jueves, 29 de septiembre de 2016

Webinars - Rare Diseases International

Webinars - Rare Diseases International



RARE DISEASES INTERNATIONAL


RDI Webinars

RDI organises Webinars to consult with its Members and other stakeholders
Webinars will be held in English (unless stated otherwise on the invitation)
Upcoming Webinar:

RDI By-laws Q&A

Thursday, September 29 from 4.00PM to 5PM (CEST)

Description: The Council of RDI has recently drafted the By-laws for the organisation and would like to consult all members
The webinar will be an opportunity for Members to ask questions, discuss and give their feedback on RDI’s Governance
Paloma Tejada, Senior Manager of Rare Diseaseas International, will present the By-laws and explain key aspects of the document. Lisa Phelps, recently-elected Member of RDI Council from the National Organisation for Rare Disorders (NORD), will be there to answer questions and collect your feedback.
All full and associate members are welcome to participate!
To access the event, please go to the following link at the time of the event:
Time Zone: (GMT+01:00) Brussels, Copenhagen, Madrid, Paris (Please note that Daylight Saving Time (+01:00 hr) is in effect during this time)
Technical tips to carry out in advance of the webinar:
If you encounter any difficulties please contact jean-marc.sfeir@eurordis.org

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