Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: PERT Dose Affects Weight Gain in Infants with Cystic Fibrosis, Study Finds Reflecting on the First Year of Parenthood Specific Gene Mutation Causes Severe CF in Georgian Jewish Patients, Study Reports Looking Back on a Year of My ‘Victorious’ Column Disease Worsening, High Healthcare Costs Seen in CF Patients Insured by Medicaid

PERT Dose Affects Weight Gain in Infants with Cystic Fibrosis, Study Finds Aug 02, 2018 07:00 am | Stacy Grieve, PhD Cystic fibrosis is (CF) patients receiving higher doses of pancreatic enzyme replacement therapy (PERT) gain more weight, a recent report shows. PERT is a tablet that contains pancreatic enzymes. When taken with food, this therapy can improve the absorption of necessary nutrients. Many CF patients struggle with weight gain. This is because the majority of them […] The post PERT Dose Affects Weight Gain in Infants with Cystic Fibrosis, Study Finds appeared first on Cystic Fibrosis News Today. Read More Reflecting on the First Year of Parenthood Aug 01, 2018 09:00 am | Janeil Whitworth With my son’s first birthday fast approaching, I have spent a lot of time thinking about how quickly this first year of parenthood has gone. I know this is the most basic parenthood thing you can say, but here I go: It. Went. Too. Quickly. It feels like we’ve just brought him home in his […] The post Reflecting on the First Year of Parenthood appeared first on Cystic Fibrosis News Today. Read More Specific Gene Mutation Causes Severe CF in Georgian Jewish Patients, Study Reports Aug 01, 2018 07:00 am | Iqra Mumal The Q359K/T360K gene mutation, which is commonly found in Jewish patients of Georgian descent, is associated with a particularly severe cystic fibrosis (CF) phenotype, according to researchers. Their study, “The Q359K/T360K mutation causes cystic fibrosis in Georgian Jews,” was published in the Journal of Cystic Fibrosis. Cystic fibrosis is a chronic lung disorder that most […] The post Specific Gene Mutation Causes Severe CF in Georgian Jewish Patients, Study Reportsappeared first on Cystic Fibrosis News Today. Read More Looking Back on a Year of My ‘Victorious’ Column Jul 31, 2018 09:00 am | Brad Dell One year ago, I was six months post-lung transplant. I was still fumbling about, trying to sort out my new body and aspirations to help other CFers with my second chance at life. I didn’t know how to inspire others to strength if I could barely walk. I didn’t know how to reconnect with the […] The post Looking Back on a Year of My ‘Victorious’ Column appeared first on Cystic Fibrosis News Today. Read More Disease Worsening, High Healthcare Costs Seen in CF Patients Insured by Medicaid Jul 31, 2018 07:00 am | Vijaya Iyer A high number of sudden disease worsening episodes — pulmonary exacerbations — and associated increases in healthcare costs were observed in Medicaid patients with cystic fibrosis (CF), according to researchers. Their study, “The burden of cystic fibrosis in the Medicaid population,” was published in the journal ClinicoEconomics and Outcomes Research. Cystic fibrosis is a chronic […] The post Disease Worsening, High Healthcare Costs Seen in CF Patients Insured by Medicaidappeared first on Cystic Fibrosis News Today. Read More

Recent News European Committee Recommends Approval of Vertex’s Combo Therapy Symkevi for Certain CF Patients Vertex Anticipates Completing Enrollment of Phase 3 Trials Testing Triple Combo Therapies CF Babies More Likely to be Born Preterm, Weigh Less, Study Finds Arcturus’ RNA Therapy for CF Shows Promise in Preclinical Studies, Company Announces I Laugh in the Face of CF — That’s How I Thrive