jueves, 31 de octubre de 2019

Topics in the CF News Today Forum That You Might Have Missed



Cystic Fibrosis News Today Weekly Forum Digest

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Dealing with CF in public places

Oct 30, 2019 08:26 am | Jenny Livingston



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I’m traveling today and as I’ve worked my way through the airport, I’ve noticed several strange looks in my direction. From people staring at my mask, to the man who intently watched me take enzymes with a snack, to the woman sitting nearby who just gave me a horrified side-eye as I spit sputum into a tissue.
Sometimes I forget that these things aren’t normal to everyone!
Do you have any funny “CF in public” stories? 
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Orkambi Benefits CF Patients But Risks Evident in Those Who Can’t Tolerate It, French Study Finds

Oct 30, 2019 05:24 am | Cystic Fibrosis News Moderator



Replies: 0
A study of Orkambi’s use in 845 CF patients found definite lung and weight benefits among those who could use Orkambi, but that 18% had to stop treatment. Read more about this study here.
What do you think of this trial and its findings?
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Not Helping Is a Form of Self-care

Oct 30, 2019 05:22 am | Cystic Fibrosis News Moderator



Replies: 0

To beat survivor’s guilt, columnist Brad Dell helps as many people as he can. However, he’s starting to realize that saying no is a valid form of self-care. Click here to read more from Brad.
Do you ever felt this kind of guilt? If so, why do you think it happens? And how do you manage it? What do you do to deal with it?
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