Frontiers | Valuing the “Burden” and Impact of Rare Diseases: A Scoping Review | Pharmacology

Frontiers | Valuing the “Burden” and Impact of Rare Diseases: A Scoping Review | Pharmacology The new article co-written by EURORDIS: “Valuing the ‘Burden’ and Impact of Rare Diseases: A Scoping Review”, is out now! Read the article to find out why a more holistic approach in rare disease studies is needed to fully assess the psychological, physical, and socio-economic impacts of living with a rare disease.