EURORDIS TV | www.eurordis.org
EURORDIS TV
2 Women With Jarcho Levin Syndrome to Meet for First Time
2 women who live with a rare disease, Jarcho Levin Syndrome, will meet for the first time and form a lifelong friendship overcoming their struggles. #TwoInAMillion Wednesdays 10/9c on TLC http://www.tlc.com/ Subscribe to TLC: http://bit.ly/SubscribeTLC Facebook: https://www.facebook.com/TLC Twitter: https://twitter.com/TL...
(more)
NEU Your support makes a difference... ut
The MUltiple System Atrophy Coalition: A Call to Action
Parents Talking About The Chromosome 18 Registry & Research Society
Rett Syndrome: One brave little girl's battle with the rare disease
2 Women With Jarcho Levin Syndrome to Meet for First Time
show more videos
Give a Toss for Huntington's Disease
An Introduction to Williams Syndrome
Documentary on Rare Diseases "Day by Day"
The LAM Foundation Awareness Video
Awareness Campaign Retinoblastoma
show more videos
EURORDIS Multi-stakeholder Symposium part 1: Improving Patient Access to Rare...
EURORDIS Multi-stakeholder Symposium part 2: Improving Patient Access to Rare...
2016 EURORDIS Awards ceremony
Peter Ryan - EURORDIS Gala Dinner 2015
Rare but Real: Talking Rare Diseases (part 1/6)
show more videos
Your Sister Has Williams Syndrome
Ellie's Story - Undiagnosed Genetic Conditions
Rare Disease: The GP's role
show more videos
Bridging patients and researchers to advance research in rare diseases.
Opening Speech by Robert Madelin to European Workshop on Rare Disease Researc...
Research: Cells from Niemann Pick C1 patients used to combat Ebola virus
Telethon's Scientific Committee: the focus on patient need
2014 Metabolic Origins of Disease Symposium - Scientific Highlights
show more videos
Rare Disease Day Official Video 2016
Campaña FADEPOF 2015 - Día Mundial de las EPOF
A message from Sean Hepburn Ferrer, Rare Disease Day Ambassador 2015
Rare Disease Day 2015 Official Video
show more videos
European orphan designation
Episode 17 - Future Outlook on the Orphan Drug Market
Eric Gervais of Medunik Canada on Canadian orphan drug market at World Orphan...
What does the black triangle mean?
show more videos
EXPANDED NEWBORN SCREENING AISMME
The Genodermatoses Network
Europe's eHealth Action Plan: An Interview with Benoit Abeloos
European recommendations for the treatment of haemophilia and other bleeding ...
Philip Watt, Chair of the Rare Disease Taskforce Ireland
show more videos
"PLANTA CARA A LA FQ " EGIOZU AURRE FQari "
ARACHNOÏDITE MALADIE DES KYSTES DE TARLOV SYRINGOMYELIE
ENVIA CORAZON AL 28014 FUNDACION ANDRES MARCIO
show more videos
EURORDIS webinar Launch of Rare Barometer Voices
European Reference Networks: hands-on guidance for the first call
Webinar: European Reference Networks, 13/10/15
Webinar: European Reference Networks, 21/07/15
Webinar: Maximising Social Media around Rare Disease Day - 25 November 2015
show more videos
No hay comentarios:
Publicar un comentario