EURORDIS TVVer un vídeo sobre las familias que luchan juntas por la curación del síndrome de la duplicación de MECP2 |
We are the Families - Fighting to cure MECP2 Duplication Syndrome together!
These are our children. These are our sons, daughters, brothers, sisters, nephews, nieces, cousins and our grandchildren.
Many of our children are unable to speak, walk or use their hands. They have breathing problems, feeding tubes, seizures, anxiety, gastr... (more)
Many of our children are unable to speak, walk or use their hands. They have breathing problems, feeding tubes, seizures, anxiety, gastr... (more)
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