Cystic Fibrosis News Today Daily Digest

Cystic Fibrosis Weekly Update Contents: NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts The Counseling Connection Vertex Joins with Affinia Therapeutics to Develop Gene Therapies for CF NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts May 01, 2020 07:00 am | Larry Luxner As the number of Americans infected with COVID-19 surpasses one million, it’s no surprise that people with rare diseases — whose immune systems were generally compromised even before the outbreak — are particularly terrified of this pandemic. That fear is evident in an online survey conducted by the National Organization for Rare Diseases (NORD), an […] The post NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts appeared first on Cystic Fibrosis News Today. Read More The Counseling Connection Apr 30, 2020 09:00 am | Lara Govendo Despite battling chronic illness, I managed to stumble through six years of college. Obtaining my master’s degree in mental health and school counseling was a herculean feat. But I didn’t power through it on my own: I believe in my own product and have had therapy on and off since college. Our society has been […] The post The Counseling Connection appeared first on Cystic Fibrosis News Today. Read More Vertex Joins with Affinia Therapeutics to Develop Gene Therapies for CF Apr 30, 2020 07:00 am | Marisa Wexler MS Vertex Pharmaceuticals announced a multiyear partnership with Affinia Therapeutics to develop gene therapies for cystic fibrosis (CF) and other genetic disorders. Gene therapy seeks to replace a malfunctioning gene with a working version. In people with CF, in particular, a gene therapy would deliver a healthy copy of the CFTR gene to replace the faulty copy that causes the […] The post Vertex Joins with Affinia Therapeutics to Develop Gene Therapies for CF appeared first on Cystic Fibrosis News Today. Read More   Recent News Orkambi Helps to Promote Glucose Tolerance in CF Patients, Study Finds Help! Quarantine Is Making Me Less Compliant Estrogen in Birth Control Pills May Affect Bone Health of CF Patients Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say Publisher’s Note: Industry Leaders Seek to Advance Innovative Resources for Rare, Orphan Disease Communities Amid COVID-19 Outbreak