Cystic Fibrosis Weekly Update

Contents:

NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

May 01, 2020 07:00 am | Larry Luxner

As the number of Americans infected with COVID-19 surpasses one million, it’s no surprise that people with rare diseases — whose immune systems were generally compromised even before the outbreak — are particularly terrified of this pandemic. That fear is evident in an online survey conducted by the National Organization for Rare Diseases (NORD), an […]
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The Counseling Connection

Apr 30, 2020 09:00 am | Lara Govendo

Despite battling chronic illness, I managed to stumble through six years of college. Obtaining my master’s degree in mental health and school counseling was a herculean feat. But I didn’t power through it on my own: I believe in my own product and have had therapy on and off since college. Our society has been […]
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Vertex Joins with Affinia Therapeutics to Develop Gene Therapies for CF

Apr 30, 2020 07:00 am | Marisa Wexler MS

Vertex Pharmaceuticals announced a multiyear partnership with Affinia Therapeutics to develop gene therapies for cystic fibrosis (CF) and other genetic disorders. Gene therapy seeks to replace a malfunctioning gene with a working version. In people with CF, in particular, a gene therapy would deliver a healthy copy of the CFTR gene to replace the faulty copy that causes the […]
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