Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: Young Girl with CF Improves After Pancreas Removal with Cell Transplant, Case Report Says Processing My Pain Was Necessary for Me to Heal from Years of Hurt MAC Lung Infections Best Treated When Specific Bacterial Species Known, Study Finds I’m Failing the System and the System Is Failing Me The Resiliency of the Human Spirit FDA Grants Priority Review to Vertex’s 1st Triple Combo for CF Young Girl with CF Improves After Pancreas Removal with Cell Transplant, Case Report Says Aug 28, 2019 07:00 am | Jose Marques Lopes, PhD A young girl with cystic fibrosis (CF) and acute recurrent pancreatitis was able to eat some food normally and experienced relief of her abdominal symptoms after undergoing a complete removal of her pancreas and a transplant of pancreatic cells into her liver, according to a case report. At 4 years old, she is reportedly the […] The post Young Girl with CF Improves After Pancreas Removal with Cell Transplant, Case Report Says appeared first on Cystic Fibrosis News Today. Read More Processing My Pain Was Necessary for Me to Heal from Years of Hurt Aug 27, 2019 09:00 am | Brad Dell In the days after I got new lungs, I’d pray for the healing to move faster so I could get on with life. I’d stand in front of a mirror and stare at the transplantation scars that cracked my chest as they shifted from blazing red to shiny purple, then faded from dull pink to […] The post Processing My Pain Was Necessary for Me to Heal from Years of Hurt appeared first on Cystic Fibrosis News Today. Read More MAC Lung Infections Best Treated When Specific Bacterial Species Known, Study Finds Aug 27, 2019 07:00 am | Steve Bryson PhD Pulmonary infection with a specific species of the Mycobacterium avium complex (MAC), called Mycobacterium intracellulare, can be aggressive in people with cystic fibrosis (CF), with a greater loss of lung function evident but a lesser incidence of a secondary lung infection, a single-site study reports. This species also responded best to antibiotic treatment, its researchers said, suggesting that […] The post MAC Lung Infections Best Treated When Specific Bacterial Species Known, Study Finds appeared first on Cystic Fibrosis News Today. Read More I’m Failing the System and the System Is Failing Me Aug 26, 2019 03:00 pm | Bailey Vincent “There’s no other way to paint it. I’m in pain. That’s my life. And no one can help me.” That was what I texted my husband after the third day of injustice from my biliary system. For the past few weeks, I’d deluded myself into thinking that what I call my chronic pancreacosis (psychotic pancreas […] The post I’m Failing the System and the System Is Failing Me appeared first on Cystic Fibrosis News Today. Read More The Resiliency of the Human Spirit Aug 26, 2019 09:00 am | Tré LaRosa Few phenomena fascinate me more than human happiness. So often we get caught up in the idea that we would be happier if so-and-so happened. I’m sure I won’t be the first to tell you that the grass ain’t always greener on the other side. This idea is known as the hedonic treadmill or the […] The post The Resiliency of the Human Spirit appeared first on Cystic Fibrosis News Today. Read More FDA Grants Priority Review to Vertex’s 1st Triple Combo for CF Aug 26, 2019 07:00 am | Patricia Inacio, PhD The U.S. Food and Drug Administration (FDA) has granted priority review to Vertex’s new drug application for its triple combination — elexacaftor (VX-445) plus tezacaftor and Kalydeco (ivacaftor) — for cystic fibrosis (CF) patients who cannot use the company’s other disease-modifying treatments or don’t benefit as intended. The FDA is expected to announce its final decision by March […] The post FDA Grants Priority Review to Vertex’s 1st Triple Combo for CF appeared first on Cystic Fibrosis News Today. Read More Recent News Can We Talk About CF Pain? Path BioAnalytics Acquires Cavosonstat From Laurel Therapeutics for Further Study Cellular Metabolism Defect May Cause Pseudomonas Lung Infections in CF Patients, Study Says Trained Sniffer Dogs Can Detect Key CF Bacteria, Study Shows