Topics in the CF News Today Forum That You Might Have Missed

Cystic Fibrosis News Today Weekly Forum Digest Join the discussion! See below for the latest topics and conversations about CF taking place in our forums. Your voice is needed! New to our forums? Register here.   CF Patients Improve Lung Function with Elexacaftor Combo, Data Show Jan 02, 2030 04:44 am | Cystic Fibrosis News Moderator Replies: 0 Adding elexacaftor to tezacaftor and ivacaftor leads to marked improvements in lung function and quality of life in people with cystic fibrosis, data show. Read more about it here. What do you think of this news? Read More Just found out that our baby has CF Jun 29, 2020 09:40 am | Ashley Replies: 6 Hello, My husband and I just found out about a week ago, through CVS, that our baby (still pregnant) will be born with CF. We are both carriers of the Delta F508 mutation. We are new to this community, and are looking for any advice and information. Thank you. Read More Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic Jun 26, 2020 07:35 am | Cystic Fibrosis News Moderator Replies: 0 Alexion Charitable Foundation has awarded $1.1 million to NORD and Global Genes to support rare disease patients amid the COVID-19 pandemic. Read the full story here. What do you think of this news? Read More Recent Posts CF Trial Resumes Enrollment in Europe, Israel, to Test Eloxx’s ELX-02 4DMT Receives Up to $14M from CFF for Development of Customized Gene Carrier Poll Results Highlight Lack of Awareness Cystic Fibrosis in the UK Study: Second-hand Smoke Affects Metabolism in Infants, Children with CF Coalition Will Address Racial Disparities in Rare Disease Communities