Cystic Fibrosis Weekly Update

Contents:

CF Families Advised to Take Preventive Measures to Avoid Coronavirus

Mar 11, 2020 09:00 am | David Melamed

With the outbreak of coronavirus (COVID-19) affecting thousands of people around the world, individuals with respiratory conditions such as cystic fibrosis (CF) need to take precautions, according to medical expert Richard K. Mathis, MD. Mathis is a board member of Claire’s Place Foundation, a nonprofit organization that supports CF patients and their families. He has personally […]
The post CF Families Advised to Take Preventive Measures to Avoid Coronavirus appeared first on Cystic Fibrosis News Today.

I Tried Fringe Science and I Don’t Regret It

Mar 10, 2020 03:00 pm | Bailey Vincent

I had an experimental stem cell transplant five years ago and it was one of the best things I’ve ever done. In all honesty, I don’t actually know how much my stem cells helped because it happened during a confusing period. In the same six-month stretch, I found out I had Brugada syndrome and was […]
The post I Tried Fringe Science and I Don’t Regret It appeared first on Cystic Fibrosis News Today.

The Cure List: Dreams Achieved and Dreams to Come

Mar 10, 2020 09:00 am | Brad Dell

cure, steroid withdrawals, fear of abandonment

I’m always promising people I’ll write a memoir … at some point. Once, I got 46,853 words deep before realizing that my writing style had evolved enough that, “Mmm, that draft is trash.” Recently, I gave it another jab. I leave my writing raw, still bleeding and unfiltered to depict past messy emotions or situations. […]
The post The Cure List: Dreams Achieved and Dreams to Come appeared first on Cystic Fibrosis News Today.

Nanoparticles with Plant Sterols May Aid Gene Therapy for CF

Mar 10, 2020 07:30 am | Joana Carvalho, PhD

Tiny particles, or nanoparticles, work better as transport and delivery vehicles for the RNA molecules central to some forms of gene therapy when plant-based relatives of cholesterol, called phytosterols, are included, scientists report. These findings are in the study, “Naturally-occurring cholesterol analogues in lipid nanoparticles induce polymorphic shape and enhance intracellular delivery of mRNA,” published […]
The post Nanoparticles with Plant Sterols May Aid Gene Therapy for CF appeared first on Cystic Fibrosis News Today.