Cystic Fibrosis Weekly Update

Contents:

Pulmonary Fibrosis Patient Spearheads Lung Transplant Foundation to Help Others

Mar 30, 2020 08:00 am | Hawken Miller

At 3 a.m. on July 6, 2003, Miami resident Jeffrey Goldstein got a call that would change his life. Doctors at the Duke University Lung Transplant Clinic had found a lung donor match for Goldstein, who had been diagnosed with pulmonary fibrosis two years earlier. Nearly 17 years later, the 62-year-old Floridian leads the nonprofit […]
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Eloxx Pauses Phase 2 Trials of ELX-02 in Cystic Fibrosis Due to COVID-19

Mar 30, 2020 07:00 am | Vanessa Pataia

Eloxx Pharmaceuticals has temporarily paused enrollment in Phase 2 clinical trials of ELX-02 in cystic fibrosis (CF) patients in response to the COVID-19 pandemic. According to Eloxx, the decision was made to avoid unnecessary exposure of CF patients, who are more at risk of COVID-19, and support global healthcare providers in their commitment to ensure […]
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I’m Worried About Coughing in Public

Mar 27, 2020 03:00 pm | Elizabeth Rogers

Lately, I’ve had a lot of fears. Like others in the global cystic fibrosis community, I’m self-isolating. I follow the CF Foundation’s COVID-19 plans religiously, and much of my county is sheltering in place, with most businesses closed. I’m fortunate to live with my parents, who can buy essentials to keep us going. Despite this, […]
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