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Cystic Fibrosis Weekly Update Contents: Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19 Armata Receives Up to $5M From CF Foundation to Develop Phage Therapy AP-PA02 Hanging by a Hope During the Coronavirus Crisis Student Project Aims to Make CF Physiotherapy a Game Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19 Mar 20, 2020 11:11 am | Larry Luxner Even with the coronavirus pandemic ravaging Europe and much of the world, patient advocate Lucia Monaco, PhD, of Italy remains confident that the Paris-based nonprofit she chairs will see the approval of 1,000 new rare disease therapies by 2027. That group, the International Rare Diseases Research Consortium (IRDiRC) — launched in 2011 by the European Union […] The post Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19 appeared first on Cystic Fibrosis News Today. Read More Armata Receives Up to $5M From CF Foundation to Develop Phage Therapy AP-PA02 Mar 20, 2020 07:00 am | Margarida Azevedo, MSc The Cystic Fibrosis Foundation has awarded up to $5 million to Armata Pharmaceuticals to advance its potential treatment AP-PA02 — a phage therapy against multidrug-resistant Pseudomonas aeruginosa infections in cystic fibrosis (CF) patients — into a Phase 1b/2 clinical trial. Phage therapy harnesses the properties of bacteriophages (or phages) — viruses that infect and kill bacteria — to […] The post Armata Receives Up to $5M From CF Foundation to Develop Phage Therapy AP-PA02 appeared first on Cystic Fibrosis News Today. Read More Hanging by a Hope During the Coronavirus Crisis Mar 19, 2020 09:00 am | Lara Govendo The invisible killer is nothing new. Something that can’t be contained? I feel that. Not knowing if or when it will hit you? Every. Single. Day. Cystic fibrosis is a monster. And so is having a transplant. There’s always an underlying fear of the untamable beast. Those of us with chronic illness have lived this […] The post Hanging by a Hope During the Coronavirus Crisis appeared first on Cystic Fibrosis News Today. Read More Student Project Aims to Make CF Physiotherapy a Game Mar 19, 2020 07:00 am | Mary Chapman A video game aimed at encouraging young cystic fibrosis (CF) patients to do their breathing exercises is being tested at Great Ormond Street Hospital in London and other sites across the UK Konglomerate Games, a company comprised of fourth-year students from Abertay University in Scotland, developed the project using £10,000 ($11,600) in funding from the […] The post Student Project Aims to Make CF Physiotherapy a Game appeared first on Cystic Fibrosis News Today. Read More Recent News West Virginia University Grad Student Assessing CF Teens’ Nutrition I Don’t Fit the Description of What CF Is ‘Supposed to Be’ Canadians Lobby Government to Reassess Proposed Regulations Affecting Access to Trikafta New CRISPR Tool Fixes CFTR Mutations in CF Patients’ Stem Cells, Study Finds My Pets Help Me Deal with Cystic Fibrosis