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CF Patients Improve Lung Function with Elexacaftor Combo, Data Show

Jan 02, 2030 04:44 am | Cystic Fibrosis News Moderator

Replies: 0

Adding elexacaftor to tezacaftor and ivacaftor leads to marked improvements in lung function and quality of life in people with cystic fibrosis, data show. Read more about it here.
What do you think of this news?

Columnist Writes About Slowing Down

Apr 29, 2020 02:00 am | Kevin Schaefer

Replies: 0
Hey everyone! Hope you all are doing well.
Check out this column from Brad, which came out earlier this year. Oddly enough, Brad wrote this right before the COVID-19 pandemic forced everyone to stay home and slow down. How’s that for irony?
That said, this is an extremely poignant column. Like Brad, I’ve been a lot healthier in recent years, and I can relate to the notion of “making up for lost time.” Sometimes, slowing down is the hardest thing to do.
This passage sticks out to me: “For three years, I lived fast, uncertain of how many days I’d have left. Today, 37 months after my lung transplant, I think I’ve made up for 23 years of missed experiences. (Then again, maybe that never should have been the goal.) I think I can slow down and appreciate what’s been and is being accomplished rather than blur past it all.”
Do you have any takeaways from this column? Can you relate to the notion of trying to make up for time when you were sick and hospitalized?