Publication of data collection forms from NHLBI funded sickle cell disease implementation consortium (SCDIC) registry | Orphanet Journal of Rare Diseases | Full Text

Publication of data collection forms from NHLBI funded sickle cell disease implementation consortium (SCDIC) registry | Orphanet Journal of Rare Diseases | Full Text

Publication of data collection forms from NHLBI funded sickle cell disease implementation consortium (SCDIC) registry

Sickle cell disease (SCD) is an autosomal recessive blood disorder affecting approximately 100,000 Americans and 3.1 million people globally. The scarcity of relevant knowledge and experience with rare disease...

Authors:Jeffrey A. Glassberg, Elizabeth A. Linton, Katrina Burson, Tabitha Hendershot, Joseph Telfair, Julie Kanter, Victor R. Gordeuk, Allison A. King, Cathy L. Melvin, Nirmish Shah, Jane S. Hankins, Axel Yannick Epié and Lynne D. Richardson

Citation:Orphanet Journal of Rare Diseases 2020 15:178

Content type:Research

 

Published on: 7 July 2020

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