The urgent need to empower rare disease organizations in China: an interview-based study | Orphanet Journal of Rare Diseases | Full Text

The urgent need to empower rare disease organizations in China: an interview-based study | Orphanet Journal of Rare Diseases | Full Text

The urgent need to empower rare disease organizations in China: an interview-based study

Each rare disease only affects a small number of population. However, a total of 7000 rare diseases may affect 10% of the population. Due to the severity and lack of rare disease awareness, rare disease repres...

Authors:Xuefeng Li, Zijuan Lu, Jianyong Zhang, Xiangyu Zhang, Shu Zhang, Jincheng Zhou, Bingzhe Li and Li Ou

Citation:Orphanet Journal of Rare Diseases 2020 15:282

Content type:Research

 

Published on: 12 October 2020

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