jueves, 15 de octubre de 2020

The urgent need to empower rare disease organizations in China: an interview-based study | Orphanet Journal of Rare Diseases | Full Text

The urgent need to empower rare disease organizations in China: an interview-based study | Orphanet Journal of Rare Diseases | Full Text

Each rare disease only affects a small number of population. However, a total of 7000 rare diseases may affect 10% of the population. Due to the severity and lack of rare disease awareness, rare disease repres...
Authors:Xuefeng Li, Zijuan Lu, Jianyong Zhang, Xiangyu Zhang, Shu Zhang, Jincheng Zhou, Bingzhe Li and Li Ou
Citation:Orphanet Journal of Rare Diseases 2020 15:282
Content type:Research
 
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