miércoles, 17 de octubre de 2018

5th RDI Annual Meeting in NYC - Rare Diseases International

5th RDI Annual Meeting in NYC - Rare Diseases International



RARE DISEASES INTERNATIONAL



The 5th Rare Diseases International Annual Meeting in NYC

Our next Annual Meeting will be on February 20, 2019 in New York, USA.
Save the Date!
The meeting will take place, the day before the Second High-Level Meeting of the NGO Commitee for Rare Diseases, which will be held at the United Nations on the occasion of Rare Disease Day.
Rare Diseases Interntional’s 5th Annual Meeting will be an all-day event:
  • Morning session (for members only): General Assembly and Membership Meeting
  • Afternoon session (open to all): Open and interactive sessions to understand, discuss and get further involved in Rare Diseases International’s advocacy plans and activities.
The meeting will also be a unique opportunity to learn from and share with other patient advocates and rare disease stakeholders from around the world.
Those present at the Meeting will be invited to participate in the Launch of the Report of the Global Commission to End the Diagnostic Odyssesy of Children with a Rare Disease, at the Microsoft New York Office, the same day.

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