Cystic Fibrosis News Today Daily Digest

Cystic Fibrosis Weekly Update Contents: Pulmonary Artery Measurements Used to Identify Pulmonary Hypertension in CF Patients We Need to Expand Our Perspective of the Coronavirus Some Calm Thoughts Amid the COVID-19 Pandemic Pandemonium COVID-19 Emergency Fund Launched to Support Cystic Fibrosis Community My Perspective on COVID-19 as a CF Patient and a Restaurant Manager Pulmonary Artery Measurements Used to Identify Pulmonary Hypertension in CF Patients Mar 25, 2020 07:00 am | Forest Ray Pulmonary artery enlargement is linked to pulmonary hypertension (PH) and lower survival among patients with severe cystic fibrosis (CF), according to a recent review of patient records. The study reporting the findings, titled “Pulmonary artery enlargement is associated with pulmonary hypertension and decreased survival in severe cystic fibrosis: A cohort study,” was published in the […] The post Pulmonary Artery Measurements Used to Identify Pulmonary Hypertension in CF Patients appeared first on Cystic Fibrosis News Today. Read More We Need to Expand Our Perspective of the Coronavirus Mar 24, 2020 03:00 pm | Bailey Vincent The cystic fibrosis (CF) community is handling COVID-19 in two ways. Some claim that people are finally getting a taste of life with CF. “We wore masks before it was cool,” they say (I stole that one). We always worry about germs. The coronavirus will impact us more than others due to our fragile immune […] The post We Need to Expand Our Perspective of the Coronavirus appeared first on Cystic Fibrosis News Today. Read More Some Calm Thoughts Amid the COVID-19 Pandemic Pandemonium Mar 24, 2020 09:00 am | Brad Dell A surreal winter, huh? Pandemic pandemonium. Over and over. “I can’t believe we even have to think about this stuff. COVID-19 is like fiction.” It’s real. I write this during week three of self-isolation. I ain’t scared for myself. This isn’t the first time I’ve defended against “biowarfare.” My body has been attractive real estate […] The post Some Calm Thoughts Amid the COVID-19 Pandemic Pandemonium appeared first on Cystic Fibrosis News Today. Read More COVID-19 Emergency Fund Launched to Support Cystic Fibrosis Community Mar 24, 2020 07:00 am | David Melamed, PhD The non-profit organization Claire’s Place Foundation has launched a donation-based COVID-19 Emergency Fund to support the cystic fibrosis (CF) community by raising funds to provide patients and their families with groceries, supplies, and medications during the outbreak. The fund will be available for people with CF and their families, from March 20 until at least April […] The post COVID-19 Emergency Fund Launched to Support Cystic Fibrosis Community appeared first on Cystic Fibrosis News Today. Read More My Perspective on COVID-19 as a CF Patient and a Restaurant Manager Mar 23, 2020 03:00 pm | Wendy Caroline My head has been spinning with how rapidly the effects from COVID-19 have engulfed the world. It is a great reminder from Mother Nature that humans are not invincible, despite what it may seem at times. I always have had two sides to my world: the businesswoman and the cystic fibrosis patient. Whenever one of […] The post My Perspective on COVID-19 as a CF Patient and a Restaurant Manager appeared first on Cystic Fibrosis News Today. Read More   Recent News Azithromycin Slows Lung Function Decline in CF Patients with P. aeruginosa, Study Says Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19 Armata Receives Up to $5M From CF Foundation to Develop Phage Therapy AP-PA02 Hanging by a Hope During the Coronavirus Crisis Student Project Aims to Make CF Physiotherapy a Game