Cystic Fibrosis News Today Daily Digest

Cystic Fibrosis Weekly Update Contents: NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum Problems with CFTR Protein in Platelets Linked to Lung Inflammation, Injury Cells Grown in Artificial Organs May Be Most Viable for Lung Disease Research How High Risk for COVID-19 Has Shaped My Perspective NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum Mar 27, 2020 11:15 am | Hawken Miller The Living Rare, Living Stronger Patient and Family Forum, originally set for May 14–16 in Cleveland, Ohio, has been postponed until July 18–20 because of the coronavirus disease COVID-19 pandemic. The event’s sponsor, the National Organization for Rare Disorders (NORD), said it will still take place at the Renaissance Cleveland Hotel, and this year’s Rare Impact Awards […] The post NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum appeared first on Cystic Fibrosis News Today. Read More Problems with CFTR Protein in Platelets Linked to Lung Inflammation, Injury Mar 27, 2020 07:30 am | Steve Bryson PhD Problems with the CFTR protein in platelets, blood cells essential to clotting, activated these cells, both driving lung inflammation and injury, and hindering the lungs’ ability to clear bacteria in a mouse models of cystic fibrosis (CF), a study found. Blocking a calcium channel known as TRPC6 returned platelets to a non-activated state, stopping the inflammation and […] The post Problems with CFTR Protein in Platelets Linked to Lung Inflammation, Injury appeared first on Cystic Fibrosis News Today. Read More Cells Grown in Artificial Organs May Be Most Viable for Lung Disease Research Mar 26, 2020 07:00 am | Ines Martins, PhD Growing cells in artificial tracheas or lungs is a better approach to model native organs than cells cultured in spheroids or in a plastic filter, according to a study, suggesting that these platforms may be more suitable to study cell-based therapies for lung diseases such as cystic fibrosis (CF). The study, “Platform Effects on Regeneration […] The post Cells Grown in Artificial Organs May Be Most Viable for Lung Disease Research appeared first on Cystic Fibrosis News Today. Read More How High Risk for COVID-19 Has Shaped My Perspective Mar 25, 2020 03:00 pm | Ella Balasa We are currently experiencing something unlike anything we have seen before: a coronavirus pandemic whose magnitude is unprecedented in modern history. Two weekends ago, I was still celebrating St. Patrick’s Day at bars with my friends. By then, people were wary. I was advised against going, but having the mindset that I’ll live my life […] The post How High Risk for COVID-19 Has Shaped My Perspective appeared first on Cystic Fibrosis News Today. Read More   Recent News Pulmonary Artery Measurements Used to Identify Pulmonary Hypertension in CF Patients We Need to Expand Our Perspective of the Coronavirus Some Calm Thoughts Amid the COVID-19 Pandemic Pandemonium COVID-19 Emergency Fund Launched to Support Cystic Fibrosis Community My Perspective on COVID-19 as a CF Patient and a Restaurant Manager