Cystic Fibrosis News Today Daily Digest

Cystic Fibrosis Weekly Update Contents: NORD’s Advice on COVID-19: You’re Stronger Than You Think CF Specialists Need More Education on Current Lung Transplant Referral Guidelines, Study Finds NORD’s Advice on COVID-19: You’re Stronger Than You Think Apr 06, 2020 07:15 am | Larry Luxner First, the bad news: If you’re one of the 30 million or so Americans with a rare disease, you probably have lower immunity to the novel coronavirus than most people. Now, the good news: You already know how to face loneliness and adversity — qualities that make you far stronger and better equipped to handle […] The post NORD’s Advice on COVID-19: You’re Stronger Than You Think appeared first on Cystic Fibrosis News Today. Read More CF Specialists Need More Education on Current Lung Transplant Referral Guidelines, Study Finds Apr 06, 2020 07:00 am | Iqra Mumal MSc When it comes to lung transplants, a study has found that the practice of many cystic fibrosis (CF) specialists differs from that of updated recommendations, highlighting a need to educate providers on new guidelines. The study, “Lung transplant referral practice patterns: a survey of cystic fibrosis physicians and general pulmonologists,” was published in the journal BMC […] The post CF Specialists Need More Education on Current Lung Transplant Referral Guidelines, Study Finds appeared first on Cystic Fibrosis News Today. Read More   Recent News Enrollment Stopped in 2 Trials of Treatments for CF Lung Infections ReCode Therapeutics Raises $80M to Boost Development of CF Therapies MRT5005 Gets FDA Rare Pediatric Disease Status as Adult Trial Faces Delay Due to COVID-19 I’m Holding a Funeral for My Former Self Vertex Assures Supply of CF Therapies, But COVID-19 Likely to Affect Trials