Cystic Fibrosis News Today Daily Digest

Cystic Fibrosis Weekly Update Contents: More Training Needed in CF End-of-life Care, Small UK Survey Shows How Essential Am I? Case Report Describes Unusual CF Symptoms That Made Diagnosis Difficult How Isolation Has Brought Calm to My Life More Training Needed in CF End-of-life Care, Small UK Survey Shows Apr 08, 2020 07:00 am | Marta Figueiredo Most healthcare professionals are not fully prepared for cystic fibrosis (CF) end-of-life care, and further training and coordination between CF and palliative care teams would be helpful, according to a small, single-center survey in the U.K. Its researchers recommended a broader survey — one nationwide, or even international — to better understand differences among centers and […] The post More Training Needed in CF End-of-life Care, Small UK Survey Shows appeared first on Cystic Fibrosis News Today. Read More How Essential Am I? Apr 07, 2020 03:00 pm | Bailey Vincent I am scared … but not for the reasons you’d think. I am worried about something I’m ashamed to admit: what happens when things go back to the way they were before. Not the eventual end to an endemic pandemic, of course, but the pace of how we used to live. It was a pace […] The post How Essential Am I? appeared first on Cystic Fibrosis News Today. Read More Case Report Describes Unusual CF Symptoms That Made Diagnosis Difficult Apr 07, 2020 07:00 am | Marisa Wexler MS An unusual clinical presentation can hinder proper diagnosis for people with cystic fibrosis (CF), even with newborn screening, a new case report contends. The report, “Uncommon clinical presentation of cystic fibrosis in a patient homozygous for a rare CFTR mutation: a case report,” was published in the journal BMC Pediatrics. Newborn screening (NBS) can be […] The post Case Report Describes Unusual CF Symptoms That Made Diagnosis Difficult appeared first on Cystic Fibrosis News Today. Read More How Isolation Has Brought Calm to My Life Apr 06, 2020 03:00 pm | Wendy Caroline Self-isolation has caused an unexpected sort of peace to my daily life. Before you call me crazy, hear me out. I am usually constantly busy. I work several jobs, partake in countless hobbies, and fill silence with an active social life. I think that is the case for many young adults these days. While there […] The post How Isolation Has Brought Calm to My Life appeared first on Cystic Fibrosis News Today. Read More   Recent News NORD’s Advice on COVID-19: You’re Stronger Than You Think CF Specialists Need More Education on Current Lung Transplant Referral Guidelines, Study Finds Enrollment Stopped in 2 Trials of Treatments for CF Lung Infections ReCode Therapeutics Raises $80M to Boost Development of CF Therapies MRT5005 Gets FDA Rare Pediatric Disease Status as Adult Trial Faces Delay Due to COVID-19