Last Posted: Apr 08, 2020
- Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data
M Hudson et al, Nat Rev Genetics, April 7, 2020 - Blockchain-Authenticated Sharing of Genomic and Clinical Outcomes Data of Patients With Cancer: A Prospective Cohort Study.
Glicksberg Benjamin Scott et al. Journal of medical Internet research 2020 Mar 22(3) e16810 - Cancer Variant Interpretation Group UK (CanVIG-UK): an exemplar national subspecialty multidisciplinary network.
Garrett Alice et al. Journal of medical genetics 2020 Mar - Evolving public views on the value of one's DNA and expectations for genomic database governance: Results from a national survey.
Briscoe Forrest et al. PloS one 2020 15(3) e0229044 - Metadata Concepts for Advancing the Use of Digital Health Technologies in Clinical Research.
Badawy Reham et al. Digital biomarkers 3(3) 116-132 - Genomic data sharing in Europe is Stumbling-Could a code of conduct prevent its fall?
Molnár-Gábor Fruzsina et al. EMBO molecular medicine 2020 Feb e11421 - 2.5 years' experience of GeneMatcher data-sharing: a powerful tool for identifying new genes responsible for rare diseases.
Bruel Ange-Line et al. Genetics in medicine : official journal of the American College of Medical Genetics 2019 21(7) 1657-1661 - Genomics: data sharing needs an international code of conduct.
Phillips Mark et al. Nature 2020 578(7793) 31-33 - Model consent clauses for rare disease research.
Nguyen Minh Thu et al. BMC medical ethics 2019 20(1) 55 - User-focused data sharing agreements: a foundation for the genomic future.
Petersen Carolyn et al. JAMIA open 2019 Dec 2(4) 402-406
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