Topics in the CF News Today Forum That You Might Have Missed

Cystic Fibrosis News Today Weekly Forum Digest Join the discussion! See below for the latest topics and conversations about CF taking place in our forums. Your voice is needed! New to our forums? Register here.   CF Patients Improve Lung Function with Elexacaftor Combo, Data Show Jan 02, 2030 04:44 am | Cystic Fibrosis News Moderator Replies: 0 Adding elexacaftor to tezacaftor and ivacaftor leads to marked improvements in lung function and quality of life in people with cystic fibrosis, data show. Read more about it here. What do you think of this news? Read More YouTube Conversation Video: Do People with Disabilities Think the Same? Apr 13, 2020 02:00 am | Kevin Schaefer Replies: 0 Hey everyone! Hope you all are staying safe and healthy out there. So I wanted to share this video with you all that I came across a few months ago. This is a fascinating video, in which a group of people with disabilities discuss topics like ableism, dating, and living with a disability. The idea is to show that within disability communities, people think differently. Panelists in this forum include people with visible and invisible disabilities. One question that sparks a lot of discussion is about whether or not participants would give up their disability if given the chance. Some vehemently answered yes, while others view their disability as a source of their identity. This conversation in particular is fascinating. Let me know your thoughts on this video! Is there a particular part of it that sticks out to you? Read More Columnist Reflects on What Lessons We Can Glean from this Pandemic Apr 10, 2020 02:00 am | Kevin Schaefer Replies: 0 My apologies for the wordy title of this post. I tried to summarize the idea of Bailey’s latest column. I found this piece to be really provocative. In spite of everything going on with the COVID-19 crisis, the upside is that we’re able to slow down a bit. Bailey writes about how she’s now able to spend more time with family, and can do virtual medical appointments. With so much negativity out there, it helps to find silver linings. Like Bailey said, I too hope our culture can learn to slow down once all this is over. Do you have any takeaways from this column? Read More Recent Posts CF Stem Cell Mutations Fixed via CRISPR Gene Editing Tool, Study Says Columnist Writes About an Unexpected Calmness in the Midst of Isolation Vertex CF Medicines Can Be Delivered Despite COVID-19, Company Says Monday Motivation: What Are Your Podcast Recommendations Mixed Emotions Regarding Trikafta