Topics in the CF News Today Forum That You Might Have Missed

Cystic Fibrosis News Today Weekly Forum Digest Join the discussion! See below for the latest topics and conversations about CF taking place in our forums. Your voice is needed! New to our forums? Register here.   CF Patients Improve Lung Function with Elexacaftor Combo, Data Show Jan 02, 2030 04:44 am | Cystic Fibrosis News Moderator Replies: 0 Adding elexacaftor to tezacaftor and ivacaftor leads to marked improvements in lung function and quality of life in people with cystic fibrosis, data show. Read more about it here. What do you think of this news? Read More Report Cites IDPN as Nutritional Tool in CF Patients with Kidney Disease Apr 23, 2020 03:51 am | Cystic Fibrosis News Moderator Replies: 0 Delivering nutrients through dialysis could help people with co-occurring cystic fibrosis and kidney disease meet nutritional requirements, a report shows. Read more here. What do you think about this study and its findings? Read More CF Families Advised on Preventive Measures to Avoid Coronavirus Apr 23, 2020 03:19 am | Cystic Fibrosis News Moderator Replies: 0 As patients with pre-existing lung diseases are particularly vulnerable to coronavirus (COVID-19) infection, one medical expert has put together a list of preventative measures that can help keep people with CF safe. Check it out here. Did you find these guidelines helpful? Read More Columnist Reflects on Transplant Journey Apr 22, 2020 02:00 am | Kevin Schaefer Replies: 0 Hey everyone! Hope you’re all staying safe and healthy out there. Check out Lara Govendo’s latest column here. She writes about her life before and after her double-lung transplant, and all of the emotions in-between. I especially like this passage: “Breath is something that most take for granted, given its innate nature. You’ll find a different perspective in those who once struggled to breathe. Taking slow, deep breaths never gets old for us. When I wake up each day I thank God and my donor for another day filled with deep breaths. Reveling in the magic of days without airway clearance paints a giant smile on my face.” Who here has undergone a lung transplant? Can you relate to Lara’s experiences? In what ways does your story differ from hers? Read More Recent Posts Using TeleMed On Not Being a Pre-existing Condition CF Teens’ Nutrition Status Studied by West Virginia Grad Student Columnist Reflects on What Lessons We Can Glean from this Pandemic Columnist Reflects on the Notion of “I’m Fine”