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CF Patients Improve Lung Function with Elexacaftor Combo, Data Show

Jan 02, 2030 04:44 am | Cystic Fibrosis News Moderator

Replies: 0

Adding elexacaftor to tezacaftor and ivacaftor leads to marked improvements in lung function and quality of life in people with cystic fibrosis, data show. Read more about it here.
What do you think of this news?

Monday Motivation: What Are Your Podcast Recommendations

Apr 06, 2020 02:00 am | Kevin Schaefer

Replies: 0
Hey everyone! Hope you all had a safe and relaxing weekend.
So since we’re all stuck at home right now, I was wondering if anyone had any good podcast recommendations. Since I work from home anyway, I listen to a lot of podcasts during the day. My favorite is called Beautiful Anonymous, a conversational show hosted by comedian Chris Gethard. This one is a great mix of human interest stories. Some episodes are hilarious, while others are more emotional and moving.
I also listen to a lot of pop-culture podcasts, and a history show called Our Fake History. In that one, host Sebastian Major breaks down historical myths like Atlantis, and looks at what’s real and what isn’t. It’s perfect for nerds like me.
Who here is a podcast connoisseur? Do you have any recommendations?

Mixed Emotions Regarding Trikafta

Apr 03, 2020 02:00 am | Kevin Schaefer

Replies: 0

Hey everyone! Hope you all made it through this week ok. Everyone managing quarantine life?
So I wanted to share Wendy’s latest column with you all. I found this piece to be both enlightening and relatable. When the first FDA-approved treatment for my disease went on the market, I had similar feelings as Wendy did about Trikafta. She writes about everything from survivor’s guilt, to the wave of emotions that come with starting a new treatment.
It’s like you spend your entire life surviving and managing your CF symptoms. Then suddenly, a treatment comes along, and your perception of where your life is headed changes drastically. It’s a lot to take in!
Do you agree with Wendy? Do you have any other thoughts regarding Trikafta?