Cystic Fibrosis Weekly Update

Contents:

Georgia College Student Receives AffloVest from Legacy Project

Jun 03, 2020 07:00 am | Hawken Miller

A deputy sheriff’s squad car, lights ablaze and sirens blaring, recently raced to Benjamin Clackum’s house on a sleepy residential street in Lawrenceville, Georgia, but no one was getting arrested. In fact, it was quite the opposite. Clackum was being presented with an AffloVest, a device that would make his life with cystic fibrosis (CF) […]
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CF Registry in UK Collecting Data on COVID-19 Infections

Jun 02, 2020 07:00 am | Marisa Wexler MS

During COVID-19, the U.K. Cystic Fibrosis Registry is taking steps to further the collection of data on how the ongoing pandemic is affecting people with cystic fibrosis (CF). The CF Registry, managed by the Cystic Fibrosis Trust, records data on patients in England, Wales, Scotland, and Northern Ireland. “It was clear early on that monitoring the […]
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Why My Service Dog Is Staying Home

Jun 01, 2020 03:00 pm | Wendy Caroline

COVID-19 has uprooted my life in many ways. Some are obvious, some are not. Like many people with disabilities, I have been in isolation since the outbreak began. Shortly after, an interesting topic came up among service dog handlers: Is it safe to use service dogs during this time? After scouring the latest research and […]
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