PROMISE Study Examines Trikafta Use Among Cystic Fibrosis Patients

PROMISE Study Examines Trikafta Use Among Cystic Fibrosis Patients

Cystic Fibrosis Weekly Update Contents: PROMISE Study Examines Trikafta Use Among CF Patients What Recent Exposure to the Virus Means to My Daughters Suppressing Function of Chloride Channel TMEM16A Eyed as Potential Therapeutic Approach We Need to Recognize Diversity in the CF Community PROMISE Study Examines Trikafta Use Among CF Patients Jun 10, 2020 07:00 am | Larry Luxner In the seven months since Vertex Pharmaceuticals’ triple-combo therapy Trikafta (elexacaftor/tezacaftor/ivacaftor) hit the market, people with cystic fibrosis, their doctors, and the Cystic Fibrosis Foundation (CFF) have all given the drug high marks for effectiveness. Trikafta, a CFTR modulator, is intended to treat CF patients with at least one copy of the F508del mutation of […] The post PROMISE Study Examines Trikafta Use Among CF Patients appeared first on Cystic Fibrosis News Today. Read More What Recent Exposure to the Virus Means to My Daughters Jun 09, 2020 03:00 pm | Bailey Vincent I’m supposed to stay away from my children. They may have accidentally been exposed to the coronavirus, but we won’t know for sure for a couple of weeks. The chance they were exposed is low. They ran into a large group of friends in the neighborhood whom we love, and hours later, they came home […] The post What Recent Exposure to the Virus Means to My Daughters appeared first on Cystic Fibrosis News Today. Read More Suppressing Function of Chloride Channel TMEM16A Eyed as Potential Therapeutic Approach Jun 09, 2020 07:00 am | Marta Figueiredo Researchers have reported the case of two siblings with impaired CFTR function due to a deficiency in another chloride channel, called TMEM16A, that do not present symptoms associated with cystic fibrosis (CF). While there is evidence supporting either the activation or the suppression of TMEM16A activity as a potential treatment of CF, these findings support the […] The post Suppressing Function of Chloride Channel TMEM16A Eyed as Potential Therapeutic Approach appeared first on Cystic Fibrosis News Today. Read More We Need to Recognize Diversity in the CF Community Jun 08, 2020 03:00 pm | Wendy Caroline A lot is happening in the world right now. We are in the midst of a pandemic and a civic revolution. I believe it is important to use my voice to start a conversation about diversity, specifically in our small community. It might be a bumpy conversation, but it needs to happen. As a white, […] The post We Need to Recognize Diversity in the CF Community appeared first on Cystic Fibrosis News Today. Read More Recent News Viral Makeup of Intestines in CF Children Altered, May Drive Inflammation Encala Improves Fat Absorption in CF Patients With Pancreatic Insufficiency, Study Shows Microbion Awarded $17M to Advance Inhaled Antimicrobial Pravibismane for Lung Infections Georgia College Student Receives AffloVest from Legacy Project CF Registry in UK Collecting Data on COVID-19 Infections