Technology Bridges Knowledge Gaps in Rare Bone Disease Care

Technology bridges knowledge gaps in rare bone disease care As part of the global observance of Rare Disease Day in February, the NCATS and NIH Clinical Center hosted a special event to raise awareness about rare diseases, the people they affect and NIH research collaborations under way to address scientific challenges and advance new treatments. This year, Children’s National Hospital orthopaedic surgeon Laura Tosi, M.D., took part in an afternoon panel, Nontraditional Approaches to Improving Access for Rare Diseases, where she outlined her work as the faculty chair of the Rare Bone Disease TeleECHO, a virtual meeting that allows care providers and experts to come together via the Zoom platform, discuss diagnosis of specific disorders and present cases for group input.

A holistic and proactive approach to cerebral palsy The cerebral palsy program at Children’s National Hospital has evolved a truly comprehensive approach. The program is designed to meet the needs of these children from infancy through young adulthood with the goal of improving function and preventing musculoskeletal deformities and complications. Tailoring treatments to young patients Children’s National president and CEO, Kurt Newman, M.D., recently spoke with Modern Healthcare about the soon-to-open Children’s National Research & Innovation Campus and how it will help address the lagging development of devices, medications and technologies specifically designed to help children.

Upcoming Events Pediatric Academic Societies Meeting April 26-May 6, 2020 Philadelphia, Pennsylvania Pediatric Orthopaedic Society of North America Annual Meeting May 13-16, 2020 San Diego, California Copyright © 2020, All rights reserved. Our mailing address is: Children's National 111 Michigan Ave NW Washington, District of Columbia 20010