Topics in the CF News Today Forum That You Might Have Missed

Cystic Fibrosis News Today Weekly Forum Digest Join the discussion! See below for the latest topics and conversations about CF taking place in our forums. Your voice is needed! New to our forums? Register here.   CF Patients Improve Lung Function with Elexacaftor Combo, Data Show Jan 02, 2030 04:44 am | Cystic Fibrosis News Moderator Replies: 0 Adding elexacaftor to tezacaftor and ivacaftor leads to marked improvements in lung function and quality of life in people with cystic fibrosis, data show. Read more about it here. What do you think of this news? Read More Leaping For Science: Do The Risks Pay Off? Mar 10, 2020 12:49 pm | Bailey Vincent Replies: 1 I wrote a column today that talks about “fringe science“. More specifically, it talks about more experimental procedures that aren’t yet covered by insurance, including stem cell therapy and phage therapy. I have heard positive things from many friends with CF, and had my own positive experience myself. Still, sometimes when people suggest more holistic options (like bone broth and celery juice) I roll my eyes. The amount of Medical Medium messages in my DMS lately is enormous (I’m not sure why it’s increasing so readily but, for some reason, people are convinced this will cure me). Question: What is the largest leap you ever taken for science or for your health? Has any risk every paid off? Read More Recent Posts Let’s Get Gross: Stuff We Don’t Talk About How do you know when you’re done having children? What cleaning products do you use in your home? The thing I don’t REALLY want to talk about, but feel like I should… What do you do for work?