martes, 14 de julio de 2020

Cystic Fibrosis News Today Daily Digest

 

Cystic Fibrosis Weekly Update

Contents:

National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US

Jul 13, 2020 09:00 am | Forest Ray



The EveryLife Foundation for Rare Diseases has launched a nationwide National Burden of Rare Disease Survey to measure the full implications, economic and social, of living with rare disease in the United States. People with rare diseases know that the impacts of such conditions extend beyond just medical bills and treatment costs, and include complex […]
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NIH Grant Supports Computer Modeling of Bacteria’s Behavior in Mucus

Jul 13, 2020 07:00 am | Marisa Wexler MS



mucus and bacteriaA five-year, $3.2 million grant from the National Institutes of Health (NIH) will fund a  research project that aims to better understand the interactions between bacteria and mucus. Results could help inform new ways of treating diseases where bacterial infections that involve mucus are problematic, such as cystic fibrosis. Mucus is a slimy substance produced […]
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