Cystic Fibrosis News Today Daily Digest

Cystic Fibrosis Weekly Update Contents: National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US NIH Grant Supports Computer Modeling of Bacteria’s Behavior in Mucus National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US Jul 13, 2020 09:00 am | Forest Ray The EveryLife Foundation for Rare Diseases has launched a nationwide National Burden of Rare Disease Survey to measure the full implications, economic and social, of living with rare disease in the United States. People with rare diseases know that the impacts of such conditions extend beyond just medical bills and treatment costs, and include complex […] The post National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US appeared first on Cystic Fibrosis News Today. Read More NIH Grant Supports Computer Modeling of Bacteria’s Behavior in Mucus Jul 13, 2020 07:00 am | Marisa Wexler MS A five-year, $3.2 million grant from the National Institutes of Health (NIH) will fund a  research project that aims to better understand the interactions between bacteria and mucus. Results could help inform new ways of treating diseases where bacterial infections that involve mucus are problematic, such as cystic fibrosis. Mucus is a slimy substance produced […] The post NIH Grant Supports Computer Modeling of Bacteria’s Behavior in Mucus appeared first on Cystic Fibrosis News Today. Read More   Recent News I Don’t Always Wear the Badge of Bravery Renovion’s ARINA-1 Shows Promise in Clearing Mucus, Cell Study Finds Rage Biotech Opens With Goal of Treating CF and Similar Lung Diseases Orkambi Benefits CF Patients Across Levels of Lung Health, Study Finds I Don’t Want to Die Because You Don’t Like Masks