Cystic Fibrosis Weekly Update

Contents:

Inflammatory Markers May Help Predict Exacerbations in Children with CF

Jul 22, 2020 07:00 am | Marisa Wexler MS

Levels of inflammatory markers in the lungs may help predict pulmonary exacerbations in children with cystic fibrosis (CF), a new study suggests. The study, “BAL inflammatory markers can predict pulmonary exacerbations in children with cystic fibrosis,” was published in the journal Chest. In people with CF, pulmonary exacerbation is a term that refers to a […]
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Why Am I So Ashamed of Chronic Pain?

Jul 21, 2020 03:00 pm | Bailey Vincent

walk, pre-existing condition, perspective, slowing down

I have never liked the term “chronic pain.” Or at least I never used to identify with it. To me, chronic pain was something hashtagged online for those who don’t know why their body is hurting or how to “handle it.” Chronic pain is for people who get reiki and sing mantras every morning instead […]
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Clinical Trial Data Support Efficacy of Trikafta in People with One F508del Mutation and One Other Mutation

Jul 21, 2020 07:00 am | Marisa Wexler MS

Trikafta (elexacaftor/tezacaftor/ivacaftor combo) improves lung function in cystic fibrosis (CF) patients who have one F508del mutation and either one gating mutation (F/G) or one residual function mutation (F/RF) in the CFTR gene, new clinical trial data show. That finding was announced by Vertex Pharmaceuticals, which markets Trikafta. “The results of this study demonstrate that the triple […]
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