Participant choices for return of genomic results in the eMERGE Network
C Howell et al, Genetics in Medicine, July 16 2020
C Howell et al, Genetics in Medicine, July 16 2020
Across the ten eMERGE sites, 4664 participants including adolescents and adults were offered some type of choice. Categories of choices offered and methods for selecting categories varied. Most participants (94.5%) chose to learn all genetic results, while 5.5% chose subsets of results.
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