30th EURORDIS Round Table of Companies Workshop

Newborn Screening: Shaping the future

This workshop will provide valuable information to its participants with the following objectives:

Understand the Newborn Screening decision-making processes and gain insight about diverse national approaches
Discuss the ethical, social and economic ramifications of the advancing landscape of Newborn Screening in light of new technologies
Gain insight into the impact on patients and families of current Newborn Screening programmes
Discuss and refine the draft position statements from the EURORDIS Working Group on Newborn screening
Learn how the rare disease community can support the advocacy of Newborn Screening

Registration for the 30th ERTC Workshop will open shortly!

ERTC members will receive an email with the link to register
If you are a patient or patient advocate and you wish to take part, please contact Martina Bergna <martina.bergna@eurordis.org>

This event is recommended for the following target audience:

Pharmaceutical and biotech representatives with expertise in:
- Medical Science, Medical & Innovation, External Science & Partnering, Medical Ethics
- Legal & Compliance Affairs
- Regulatory Affairs
- Health Economics, Health Technology Assessment (HTA)
- Patient Advocacy, Public Affairs, Patient Engagement, Patient Partnership, Patient Support
- Data protection (GDPR), Data Sharing and Storage
Biobanks and certification labs for Newborn Screening
National Newborn Screening Programme Leaders and Coordinators / Policy makers
National Newborn Screening Advisory Committee Members
Rare disease patient representatives engaged in Newborn Screening pilots or interested in this topic