miércoles, 1 de julio de 2020

Topics in the CF News Today Forum That You Might Have Missed



Cystic Fibrosis News Today Weekly Forum Digest

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CF Patients Improve Lung Function with Elexacaftor Combo, Data Show

Jan 02, 2030 04:44 am | Cystic Fibrosis News Moderator



Replies: 0

Adding elexacaftor to tezacaftor and ivacaftor leads to marked improvements in lung function and quality of life in people with cystic fibrosis, data show. Read more about it here.
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Just found out that our baby has CF

Jun 29, 2020 09:40 am | Ashley



Replies: 6
Hello,
My husband and I just found out about a week ago, through CVS, that our baby (still pregnant) will be born with CF. We are both carriers of the Delta F508 mutation.
We are new to this community, and are looking for any advice and information.
Thank you.
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Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Jun 26, 2020 07:35 am | Cystic Fibrosis News Moderator



Replies: 0

Alexion Charitable Foundation has awarded $1.1 million to NORD and Global Genes to support rare disease patients amid the COVID-19 pandemic. Read the full story here.
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