Dear Victor Norberto, |
We are so excited to partner with The Disorder Channel to feature three nights of RARE Watch parties during Global Genes LIVE! You’ll also have the opportunity to engage with those involved in the films afterwards for a Q&A session. Experience films like: |
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- “Me, my sister, and Blau”: A brother’s story of love, dedication, and courage in the face of his sister’s passing.
- “The Foundations of Rare”: How two parents built up SynGAP research from the ground up to help save their son.
- “Brick in The Wall”: A film about finding hope for myotubular myopathy research through a dog named Nibs.
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Hosted by some of our favorite rare disease podcasters like Kyle and Sean of 2 Disabled Dudes, Sanath Kumar Ramesh of Raising Rare and Effie Parks of Once Upon a Gene, grab some popcorn and get ready! |
Plus, if you haven't grabbed a swag bag yet, get yours before it's too late! |
We can’t wait to engage with you at the watch parties on Sept. 16-18. Register for Global Genes LIVE! today. |
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