Cystic Fibrosis Weekly Update

Contents:

Time Contracts Near Tragedy

Sep 28, 2020 09:00 am | Tré LaRosa

My last column, a letter to my younger self, was written before the pandemic. When the world first began to realize the havoc wreaked by COVID-19, I predicted I would be reading and writing more than ever. The converse ended up being true. Writing (my consolation) and reading (my guide in this difficult world) both […]
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FDA Approves CF Treatment Kalydeco for Infants as Young as 4 Months

Sep 28, 2020 07:00 am | Marisa Wexler MS

The U.S. Food and Drug Administration (FDA) has approved Vertex Pharmaceuticals‘ Kalydeco (ivacaftor) as a treatment for infants as young as four months with cystic fibrosis (CF) caused by certain mutations. The approval makes Kalydeco the first medication in its class to be approved for such a young age group. “Initiating therapy that treats the […]
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