miércoles, 17 de octubre de 2018

Let’s make a pact to ensure patients’ sustainable access to rare disease therapies

EURORDIS - The Voice of Rare Disease Patients in Europe
Eurordis, Rare Diseases Europe
The Voice of Rare Disease
Patients in Europe

3rd EURORDIS Multi-Stakeholder Symposium on Improving Patients’ Access to Rare Disease Therapies


Let’s make a pact to ensure patients’ sustainable access to rare disease therapies

13-14 February 2019 
Crowne Plaza Brussels – Le Palace, Rue Gineste 3, 1210 Bruxelles, Belgium
Metro Station: Rogier
An exceptional two-day event not to be missed!
Attend to take part in discussions with patient advocates, policy makers, payers, HTA bodies, clinicians, healthcare industry executives and investors on how to improve patients’ access to rare disease medicines. Learn more about actions planned ahead of the European elections in May 2019.
Views expressed by participants will go towards producing a roadmap document, which will offer practical and implementable solutions and set out the commitment of all players, working towards the goal of accelerating the development of, and guaranteeing timely and universal access to, rare disease therapies.
This roadmap will be broadly disseminated to European and national institutions ahead of the May 2019 European parliamentary elections.
This event is recommended for:
  • Patient advocates
  • Payers, health technology assessment (HTA) bodies, and national Competent Authorities
  • Policy makers and regulators
  • Clinicians and academics
  • Pharmaceutical and biotech industry leaders
  • Consultants and Investors

Registration

Registration will open on 12th November 2018 via this webpage.

Documents

A full draft programme will be made available in the coming weeks.

Patient advocate fellowships

Are you a patient or patient representative? Apply for a fellowship to attend the Symposium.
EURORDIS is offering up to 20 fellowships for patient advocates, to include a registration fee waiver and covering accommodation for one night and return trip economy fare travel for a maximum of 400 € per fellowship (upon submission of original receipts).
Apply here by 30 November 2018. Fellowships will be awarded by an ad-hoc committee and the selected fellows will be notified by 15 December 2018.Attendance to this Symposium will require some preparatory work (pre-Symposium webinars and reading materials), a good knowledge of health technology assessment (HTA) and a good level of English.

Accommodation

Hotel accommodation is not provided by EURORDIS.

Official partners

EPF.jpg                                     efpia_2.jpg                                            eurocope.jpg
europabio_0.jpg                                      HOPE_0.jpg                                           PGEU.jpg

Contact

Questions regarding this event? Please contact Martina Bergna, Events Junior Manager: martina.bergna@eurordis.org

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