Cystic Fibrosis News Today Daily Digest

Cystic Fibrosis Weekly Update Contents: Majority of Home Nebulizers Used by CF Children Contaminated with Microorganisms, Leading to Exacerbated Symptoms, Study Finds Important Breaking News: I Am Not You Synspira Therapeutics, CF Foundation Agree to Support Development of SNSP003 for Malabsorption Syndromes Trust the Process: Your Hard Work Will Be Worth It in the End Majority of Home Nebulizers Used by CF Children Contaminated with Microorganisms, Leading to Exacerbated Symptoms, Study Finds Feb 19, 2020 08:00 am | David Melamed More than 70% of home nebulizers used by children with cystic fibrosis (CF) are contaminated with microorganisms, posing a serious potential health risk to patients and underscoring a significant need for educational programs focused on nebulizer maintenance and hygiene, a research study found. The study also found a significant correlation between patients with contaminated nebulizers […] The post Majority of Home Nebulizers Used by CF Children Contaminated with Microorganisms, Leading to Exacerbated Symptoms, Study Finds appeared first on Cystic Fibrosis News Today. Read More Important Breaking News: I Am Not You Feb 18, 2020 03:00 pm | Bailey Vincent I’m going to talk about something other than sickness for a second. But stay with me, because I’m coming back to that, too. By the time you read this, the Oscars will be a week behind us. A South Korean film named “Parasite” will have won best picture. And likely you already will have heard […] The post Important Breaking News: I Am Not You appeared first on Cystic Fibrosis News Today. Read More Synspira Therapeutics, CF Foundation Agree to Support Development of SNSP003 for Malabsorption Syndromes Feb 18, 2020 07:00 am | Iqra Mumal MSc The Cystic Fibrosis Foundation has reached an agreement with Synspira Therapeutics to support the further development of SNSP003, an enzyme replacement therapy (ERT) designed to treat malabsorption syndromes, including those affecting patients with cystic fibrosis (CF). Malabsorption syndromes are a group of disorders that develop when there is a defect in the digestion and absorption of […] The post Synspira Therapeutics, CF Foundation Agree to Support Development of SNSP003 for Malabsorption Syndromes appeared first on Cystic Fibrosis News Today. Read More Trust the Process: Your Hard Work Will Be Worth It in the End Feb 17, 2020 03:00 pm | Wendy Caroline I did not trust the process. I was impatient. A common theme with technological advancements is the expectation of instantaneous results. How many times have you heard someone tell you to “Just give it time”? That’s easier said than done. We started walking to raise money for the Cystic Fibrosis Foundation 30 years ago. It […] The post Trust the Process: Your Hard Work Will Be Worth It in the End appeared first on Cystic Fibrosis News Today. Read More   Recent News Noninvasive XV Technology May Lead to Faster CF Diagnosis and Better Treatment Iron Deficiency Common Among CF Patients and Requires Routine Screening and Guidelines, Study Suggests Presence of Heme B in Sputum Linked to Worse Lung Function in CF Patients, Study Shows When Comparing Yourself to Others Makes You the Worst FDA Efforts to Bring Patients into Treatment Decisions Focus of NORD Webinar