EURORDIS TV
Are our hospitals and research infrastructures ready for the new General Data Protection Regulation (GDPR)? On 2 February 2017, EURORDIS organised a webinar to inform rare disease patients on the legal and ethical impacts of the new data protection regulation on data sharing in Europe. The webinar included presentations from: -Dr Petra Wilson, Director at the Digital Health and Care Institute, Scotland, who explained the legal impacts of the new data protection regulation for sharing data cross-border for virtual healthcare consultations in the future European Reference Networks (ERNs). -Dr Deborah Mascalzoni, bioethicist at Uppsala University, Sweden who focused on the ethical aspects of the new regulation relating to data sharing in European research projects for rare diseases.
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