Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: We Need to Allow Ourselves to Heal Stem Cell Transplant Into Airways Might Treat CF, Mouse Study Suggests Mutations in Genes Regulating Digestion Prevalent in CF Patients with Pancreatitis, Study Finds Identifying and Addressing 3 Barriers to Treatment Adherence CF Lung Transplant Candidates: It’s OK to Be Afraid CF Patients at Greater Risk for Occlusions in Retinal Vessels, Case Report Suggests Airway Clearance Vests Fail to Show Measurable Lung Benefits in Short Term, Study Reports We Need to Allow Ourselves to Heal Aug 16, 2018 09:00 am | Hannah Buck We all need to stop picking our scabs. There’s something so simple and satisfying about it: carefully removing that which is crusty and dead, seeing what fleshy colors lie beneath. It’s carnal and human, albeit totally gross. But, if we’re bravely honest with ourselves, what other reasons might explain why we seem to be addicted […] The post We Need to Allow Ourselves to Heal appeared first on Cystic Fibrosis News Today. Read More Stem Cell Transplant Into Airways Might Treat CF, Mouse Study Suggests Aug 16, 2018 07:00 am | Patricia Inacio, PhD A study in mice showed it is possible to transplant stem cells into the lungs and replenish the airways with healthy cells, an approach that could combat cystic fibrosis and alleviate its symptoms. Researchers used stem cells from the airways of cystic fibrosis (CF) patients, which were corrected to produce a normal CFTR gene before being […] The post Stem Cell Transplant Into Airways Might Treat CF, Mouse Study Suggests appeared first on Cystic Fibrosis News Today. Read More Mutations in Genes Regulating Digestion Prevalent in CF Patients with Pancreatitis, Study Finds Aug 15, 2018 12:21 pm | Vijaya Iyer In addition to mutations in the CFTR gene, cystic fibrosis (CF) patients with pancreatitis also have a high prevalence of mutations in genes regulating pancreatic function, according to researchers. Conducted by a research team in Italy, the study, “Trans-heterozygosity for mutations enhances the risk of recurrent/chronic pancreatitis in patients with Cystic Fibrosis,” was published in […] The post Mutations in Genes Regulating Digestion Prevalent in CF Patients with Pancreatitis, Study Finds appeared first on Cystic Fibrosis News Today. Read More Identifying and Addressing 3 Barriers to Treatment Adherence Aug 15, 2018 09:00 am | Janeil Whitworth Cystic fibrosis requires a complex and time-consuming treatment plan beyond what many other chronic illnesses require. It’s important to identify the barriers to treatment adherence and find practical ways to address the issues. Forgetfulness We have all been there, the perplexing pause followed by the blank stare directed at the bottle wondering if you just […] The post Identifying and Addressing 3 Barriers to Treatment Adherence appeared first on Cystic Fibrosis News Today. Read More CF Lung Transplant Candidates: It’s OK to Be Afraid Aug 14, 2018 09:00 am | Brad Dell September 2016 Every bone, tooth, and vein in my body trembled. The oxygen cannula hugging my nostrils slipped on sweat. I sat at a cold table with my pre-transplant coordinator who’d subjected me to a presentation that vividly, gruesomely, described the lung transplant process. It seemed more like a plot description for a “Saw” film. […] The post CF Lung Transplant Candidates: It’s OK to Be Afraid appeared first on Cystic Fibrosis News Today. Read More CF Patients at Greater Risk for Occlusions in Retinal Vessels, Case Report Suggests Aug 14, 2018 08:23 am | Alice Melão Patients with cystic fibrosis (CF) have a greater risk of developing abnormalities in their retinal veins, which can impair visual acuity, a case report suggests. But researchers claim the higher risk is not due to one single factor, but to several contributing risk factors for vascular events. The study, “Acute retinal vein occlusion and cystic […] The post CF Patients at Greater Risk for Occlusions in Retinal Vessels, Case Report Suggestsappeared first on Cystic Fibrosis News Today. Read More Airway Clearance Vests Fail to Show Measurable Lung Benefits in Short Term, Study Reports Aug 13, 2018 11:48 am | Iqra Mumal A clinical study into high-frequency chest wall oscillation vests — assessing their short-term impact on standard measures of lung function before and during use — challenges the view that these devices work through airflow bias in the lungs, the process responsible for mucus movement when breathing. Findings, using established tests that include forced vital capacity (FVC), forced expiratory volume (FEV1), […] The post Airway Clearance Vests Fail to Show Measurable Lung Benefits in Short Term, Study Reports appeared first on Cystic Fibrosis News Today. Read More Recent News CF Pregnancy: The Words of 4 Mothers Who Have Had Babies Synspira’s SNSP113 Shows Ability to Completely Kill Drug-Resistant Bacteria in Lab, Study Reports Pretend You’re a Yogi