Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: Pretend You’re a Yogi European Partners Combining Efforts to Develop New Gene Therapy for Cystic Fibrosis What’s the Deal with Breastfeeding and CF? Orkambi Approved by FDA as First CF Medicine for Children Ages 2-5 There’s Jubilant Laughter at the Transplant Games of America HeadsUp, a Urine-Based Diagnostic Test for CF Patients, Will be Tested in Phase 1/2 Trial Pretend You’re a Yogi Aug 09, 2018 09:00 am | Hannah Buck This morning, I managed to forget my yoga mat. Twice. It was 8:43 a.m. by the time I had walked the dog, readied myself, gathered my belongings, and finally locked the front door. Three steps later: Oh, crap. Where’s my mat? I was already running late. My best friend, Amber, and I had planned to start walking […] The post Pretend You’re a Yogi appeared first on Cystic Fibrosis News Today. Read More European Partners Combining Efforts to Develop New Gene Therapy for Cystic Fibrosis Aug 09, 2018 07:00 am | Diogo Pinto Pharmaceutical companies Boehringer Ingelheim and Oxford BioMedica are teaming up with the U.K. Cystic Fibrosis Gene Therapy Consortium (GTC) and Imperial Innovations in a collaborative effort to develop a first-in-class, long-term gene therapy to treat cystic fibrosis (CF). The GTC is made up of researchers at Imperial College London and the Universities of Oxford and Edinburgh. This new collaboration will combine […] The post European Partners Combining Efforts to Develop New Gene Therapy for Cystic Fibrosisappeared first on Cystic Fibrosis News Today. Read More What’s the Deal with Breastfeeding and CF? Aug 08, 2018 09:00 am | Janeil Whitworth Happy World Breastfeeding Week! That’s right, in this column we are talking about breasts and the wonderful thing they can do: feed tiny humans. I want to dive into the reasons to breastfeed and how cystic fibrosis plays a role in the choice of whether or not to breastfeed. Why breastfeed? The benefits of breastfeeding […] The post What’s the Deal with Breastfeeding and CF? appeared first on Cystic Fibrosis News Today. Read More Orkambi Approved by FDA as First CF Medicine for Children Ages 2-5 Aug 08, 2018 07:30 am | Diogo Pinto Vertex Pharmaceuticals’ Orkambi (lumacaftor/ivacaftor), a licensed medicine used to treat cystic fibrosis (CF) patients ages 6 and older, has now been approved by the U.S. Food and Drug Administration as the first medicine to treat CF in children ages 2-5. The approval is for children who have two copies of the F508del-CFTR mutation, the most […] The post Orkambi Approved by FDA as First CF Medicine for Children Ages 2-5 appeared first on Cystic Fibrosis News Today. Read More There’s Jubilant Laughter at the Transplant Games of America Aug 07, 2018 09:00 am | Brad Dell July 28, 1 p.m. We’re laughing. Some of us literally poured blood, sweat, and tears to be there laughing. Transplant recipients, like me. Others thought they’d never see their loved ones laugh again, much less years later. Caregivers. Others doubted they’d ever laugh again after they lost the one. The one whose organs now power […] The post There’s Jubilant Laughter at the Transplant Games of America appeared first on Cystic Fibrosis News Today. Read More HeadsUp, a Urine-Based Diagnostic Test for CF Patients, Will be Tested in Phase 1/2 Trial Aug 07, 2018 08:00 am | Diogo Pinto Mologic, an U.K.-based company developing personalized diagnostic devices, announced the beginning of a Phase 1/2 clinical trial to test its urine-based diagnostic tool, HeadsUp, to monitor pulmonary exacerbations in patients with cystic fibrosis (CF). The study is designed to identify biomarkers, present in urine of CF adult patients, that are linked to the worsening of lung […] The post HeadsUp, a Urine-Based Diagnostic Test for CF Patients, Will be Tested in Phase 1/2 Trial appeared first on Cystic Fibrosis News Today. Read More Recent News Acebilustat Seen to Prevent Pulmonary Exacerbations in CF Patients in Phase 2b Trial New, Rare Cell Type in Lung Airways Identified as Key Carrier of CFTR Gene, Study Reports Tips to Make Traveling with CF a Little Easier PERT Dose Affects Weight Gain in Infants with Cystic Fibrosis, Study Finds