jueves, 9 de agosto de 2018

Cystic Fibrosis News Today Weekly Digest


Cystic Fibrosis Weekly Update

Contents:

Pretend You’re a Yogi

Aug 09, 2018 09:00 am | Hannah Buck



yogiThis morning, I managed to forget my yoga mat. Twice. It was 8:43 a.m. by the time I had walked the dog, readied myself, gathered my belongings, and finally locked the front door. Three steps later: Oh, crap. Where’s my mat? I was already running late. My best friend, Amber, and I had planned to start walking […]
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European Partners Combining Efforts to Develop New Gene Therapy for Cystic Fibrosis

Aug 09, 2018 07:00 am | Diogo Pinto



European partnershipPharmaceutical companies Boehringer Ingelheim and Oxford BioMedica are teaming up with the U.K. Cystic Fibrosis Gene Therapy Consortium (GTC) and Imperial Innovations in a collaborative effort to develop a first-in-class, long-term gene therapy to treat cystic fibrosis (CF). The GTC is made up of researchers at Imperial College London and the Universities of Oxford and Edinburgh. This new collaboration will combine […]
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What’s the Deal with Breastfeeding and CF?

Aug 08, 2018 09:00 am | Janeil Whitworth



breastfeedingHappy World Breastfeeding Week! That’s right, in this column we are talking about breasts and the wonderful thing they can do: feed tiny humans. I want to dive into the reasons to breastfeed and how cystic fibrosis plays a role in the choice of whether or not to breastfeed. Why breastfeed? The benefits of breastfeeding […]
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Orkambi Approved by FDA as First CF Medicine for Children Ages 2-5

Aug 08, 2018 07:30 am | Diogo Pinto



Orkambi for children 2-5Vertex Pharmaceuticals’ Orkambi (lumacaftor/ivacaftor), a licensed medicine used to treat cystic fibrosis (CF) patients ages 6 and older, has now been approved by the U.S. Food and Drug Administration as the first medicine to treat CF in children ages 2-5. The approval is for children who have two copies of the F508del-CFTR mutation, the most […]
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There’s Jubilant Laughter at the Transplant Games of America

Aug 07, 2018 09:00 am | Brad Dell



transplant gamesJuly 28, 1 p.m. We’re laughing. Some of us literally poured blood, sweat, and tears to be there laughing. Transplant recipients, like me. Others thought they’d never see their loved ones laugh again, much less years later. Caregivers. Others doubted they’d ever laugh again after they lost the one. The one whose organs now power […]
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HeadsUp, a Urine-Based Diagnostic Test for CF Patients, Will be Tested in Phase 1/2 Trial

Aug 07, 2018 08:00 am | Diogo Pinto



HeadsUpMologic, an U.K.-based company developing personalized diagnostic devices, announced the beginning of a Phase 1/2 clinical trial to test its urine-based diagnostic tool, HeadsUp, to monitor pulmonary exacerbations in patients with cystic fibrosis (CF). The study is designed to identify biomarkers, present in urine of CF adult patients, that are linked to the worsening of lung […]
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Recent News

Acebilustat Seen to Prevent Pulmonary Exacerbations in CF Patients in Phase 2b Trial
New, Rare Cell Type in Lung Airways Identified as Key Carrier of CFTR Gene, Study Reports
Tips to Make Traveling with CF a Little Easier
PERT Dose Affects Weight Gain in Infants with Cystic Fibrosis, Study Finds

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