Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: Orkambi Not Seen to Significantly Improve Blood Glucose Levels in CF Patients in Small Study I Have Cystic Fibrosis, and CF Has Me ELITechGroup Launches Improved Macroduct Sweat Test for Cystic Fibrosis Diagnosis Who Runs the Ward? Women. Orkambi Soon to Be Added to Public Health Plan for CF Patients in Australia Orkambi Not Seen to Significantly Improve Blood Glucose Levels in CF Patients in Small Study Aug 23, 2018 07:00 am | Ashraf Malhas, PhD Analysis of blood glucose levels in cystic fibrosis (CF) patients being treated with Orkambi (ivacaftor/lumacaftor) shows that the therapy has minimal impact on glycemic control, a small study reports. Up to 50 percent of adults with cystic fibrosis develop diabetes, making so-called CF-related diabetes (CFRD) the most common comorbidity, or coexisting condition, in these patients. The […] The post Orkambi Not Seen to Significantly Improve Blood Glucose Levels in CF Patients in Small Study appeared first on Cystic Fibrosis News Today. Read More I Have Cystic Fibrosis, and CF Has Me Aug 22, 2018 03:00 pm | Ella Balasa I hear others say “I have CF. CF doesn’t have me.” This may be an accurate statement for some, the small percentage of patients who are not limited by this disease. Those who climb mountain peaks, work 60 hours a week, and raise three children. They could say this statement is true. They conquer everything, […] The post I Have Cystic Fibrosis, and CF Has Me appeared first on Cystic Fibrosis News Today. Read More ELITechGroup Launches Improved Macroduct Sweat Test for Cystic Fibrosis Diagnosis Aug 22, 2018 07:30 am | Iqra Mumal ELITechGroup Biomedical Systems has released a new, advanced version of its Macroduct system, called the Macroduct Advanced Sweat Collection System, which allows for improved standardized sweat testing for the diagnosis of cystic fibrosis. The Macroduct Advanced Sweat Collection System has been cleared by the U.S Food and Drug Administration. A sweat test measures the amount of chloride present in […] The post ELITechGroup Launches Improved Macroduct Sweat Test for Cystic Fibrosis Diagnosisappeared first on Cystic Fibrosis News Today. Read More Who Runs the Ward? Women. Aug 21, 2018 09:00 am | Brad Dell I’ve been in sticky situations with dude doctors. With many male doctors, it’s a CF battle. We’re overcome by politics and competition; tackling for command and barking orders at each other. Yes, it’s mutual because I’m a stubborn dude, too. That said, I’ve had some incredible docs who are men, including my current ones. But […] The post Who Runs the Ward? Women. appeared first on Cystic Fibrosis News Today. Read More Orkambi Soon to Be Added to Public Health Plan for CF Patients in Australia Aug 21, 2018 07:00 am | Jose Marques Lopes, PhD Orkambi (lumacaftor/ivacaftor), a treatment for cystic fibrosis (CF) patients in Australia age 6 and up, is closer to being subsidized by the government, according to Vertex Pharmaceuticals, the medication’s manufacturer. The company received a recommendation from the Pharmaceutical Benefits Advisory Committee (PBAC), an independent expert body, to list Orkambi on Australia’s Pharmaceutical Benefits Scheme (PBS), which […] The post Orkambi Soon to Be Added to Public Health Plan for CF Patients in Australia appeared first on Cystic Fibrosis News Today. Read More Recent News Israeli CF Patient Advocacy Group Urges Better Access to Screening, Key Therapies CF Mamas Discuss Pregnancy Health, Delivery, and Breastfeeding FDA Expands Kalydeco’s Approval to 1-year-old Toddlers with Cystic Fibrosis We Need to Allow Ourselves to Heal Stem Cell Transplant Into Airways Might Treat CF, Mouse Study Suggests