28th EURORDIS Round Table of Companies Workshop

A New PARADIGM of Meaningful Patient Engagement in the Life Cycle of Medicines

Tuesday, 15 October 2019 (09:00 to 17:00)

This workshop will provide valuable information to its participants with the following objectives:

Understand which good practices EURORDIS promotes and implements for working with patients to develop therapies for rare diseases
Understand the objectives of PARADIGM and how to enable meaningful patient engagement in the product life-cycle as a whole
Reflect on the return on engagement as a win-win process between developers and patients
Learn about patient expectations with regards to the value of patient engagement (financial value, quality, representativeness)
Learn how to implement a Monitoring and Evaluation Framework in your patient engagement activities
Understand and use metrics for evaluating Community Advisory Boards (CABs)
Reflect and raise awareness on the management of competing interests in a multi-stakeholder environment

Registration for the 28 ERTC Workshop is now open!

ERTC members will receive an email with the link to register
If you are a patient or patient advocate and you wish to take part, please contact Martina Bergna <martina.bergna@eurordis.org>

This event is recommended for the following target audience:

Pharmaceutical and biotech representatives with expertise in:
- Clinical Project Management, Science Policy, Clinical Development, Medical Science, Research, Medical & Innovation, Medicines Development, Research & Development, External Science & Partnering, Clinical Scientists, Legal & Compliance Affairs
- Regulatory Affairs
- Patient Advocacy, Public Affairs, Patient Engagement, Patient Partnership, Patient Support
Medical device companies
Rare disease patient representatives engaged in active Community Advisory Boards (CABs) or those in creation