Cystic Fibrosis Weekly Update

Contents:

ICER Seeking Feedback from Stakeholders on CF Treatments

Sep 11, 2019 07:00 am | Joana Carvalho, MSc

The clinical effectiveness and cost-benefit of several cystic fibrosis (CF) therapies will be the focus of a final evidence report by the Institute for Clinical and Economic Review (ICER), which is currently seeking feedback from CF stakeholders for the report. The report will mainly evaluate the effects of Vertex Pharmaceuticals’ elexacaftor (VX-445), tezacaftor, and ivacaftor […]
The post ICER Seeking Feedback from Stakeholders on CF Treatments appeared first on Cystic Fibrosis News Today.

I Don’t Identify with the Word Disabled

Sep 10, 2019 03:00 pm | Bailey Vincent

I’m going to say something many people won’t like: I struggle with the word “disability.” In the eyes of society, I am technically “disabled,” but that doesn’t stop me from struggling with the term. If it isn’t illness keeping me in and out of the hospital (consistency is not my middle name), it’s profound hearing […]
The post I Don’t Identify with the Word Disabled appeared first on Cystic Fibrosis News Today.

Drexel Study to Look at Tailored ‘Talk’ Therapy in Helping Ease Depression and Anxiety in CF Patients

Sep 10, 2019 07:00 am | Marisa Wexler MS

How well Acceptance and Commitment Therapy (ACT), or tailored “talk” therapy that can be delivered via telemedicine, helps people with cystic fibrosis (CF) cope with mental health issues will be the focus of an upcoming study. Supported by a three-year, $960,000 grant from the Boomer Esiason Foundation, the study is to be led by C. Virginia […]
The post Drexel Study to Look at Tailored ‘Talk’ Therapy in Helping Ease Depression and Anxiety in CF Patients appeared first on Cystic Fibrosis News Today.