Cystic Fibrosis News Today Weekly Forum Digest

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A Sick Playlist

Sep 18, 2019 11:39 am | Luisa Palazola

Replies: 0
I think what you consume (whether food, television, news, music, ANYTHING — impacts your mood and perhaps your ability to get better). At the very least, this music helps me feel a bit better, for various reasons (or for no apparent reason) Here are my top songs that I listen to when I feel like sh*t. Link me the music you like when you feel like sh*t or when you feel well!
1.
2. Wona (Mumford & Sons)

3. Siembra (Bomba Estéreo)

4. Here Comes the Sun (The Beatles)

5. Times Like These (Jack Johnson)

6. Vine a Buscarte (Fonseca)

7. La Vuelta al Mundo (Calle 13)

8. Simple Twist of Fate (Bob Dylan)

9. Don’t Panic (Coldplay)

10. Flapper Girl (The Lumineers)

What're your CF Tattoos?

Sep 18, 2019 11:12 am | Luisa Palazola

Replies: 0
Last year I got my first real tattoo. I scheduled an appointment with an artist I had followed on IG and drove 3 hours to get a my piece done by him. After him postponing my original appointment and then kinda forgetting I was coming on our rescheduled date, a resilient best friend, and some coffee: I got my piece.
I won’t leave out the special details of accidentally (or cosmically?) meeting a Brazilian man, who felt like home, and who also helped me keep this tattoo clean that night. Sometimes, things fall apart, to make way for beautiful encounters and to unveil deep connections that have always been there

Here’s that special tattoo

View this post on Instagram

Ahhhh

A post shared by Luisa Palazola (@ladilla93) on Aug 3, 2018 at 3:39pm PDT

This topic was modified 16 hours, 48 minutes ago by Luisa Palazola.
This topic was modified 16 hours, 46 minutes ago by Luisa Palazola.

I Spent a Day on Capitol Hill Talking About CF and Healthcare

Sep 18, 2019 04:54 am | Cystic Fibrosis News Moderator

Replies: 0
Columnist Tré LaRosa was invited to Capitol Hill to share his story as a representative of the cystic fibrosis community. Click here to find out how it went!
Have you ever thought about what you would say if you had an opportunity like this? What would you like to tell your elected representatives on behalf of the CF community?

Can CF-tailored Talk Therapy Help with Depression and Anxiety? Drexel Study Seeks to Find Out

Sep 18, 2019 04:53 am | Cystic Fibrosis News Moderator

Replies: 0
An upcoming study is looking at how well Acceptance and Commitment Therapy (ACT), or tailored “talk” therapy that can be delivered via telemedicine, helps people with cystic fibrosis (CF) cope with mental health issues. Click here to learn more about the study.
Do you think ACT delivered via telemedicine could be beneficial to you or others in the CF community?