Cystic Fibrosis News Today Daily Digest

Cystic Fibrosis Weekly Update Contents: Vertex Seeks to Expand FDA Approval of CFTR Modulators to Include More Mutations Advance Directives, Legacy, and Worrying Myself Sick Interventional Treatment for My Social Sickness CFF Funding Will Further ContraFect’s Research Into Alternative for Antibiotics Vertex Seeks to Expand FDA Approval of CFTR Modulators to Include More Mutations Sep 02, 2020 07:00 am | Marisa Wexler MS The U.S. Food and Drug Administration (FDA) is reviewing applications from Vertex Pharmaceuticals to expand the approval for three of the company’s cystic fibrosis (CF) therapies: Trikafta (elexacaftor/tezacaftor/ivacaftor and ivacaftor), Symdeko (tezacaftor/ivacaftor and ivacaftor), and Kalydeco (ivacaftor). The three novel supplemental new drug applications (sNDAs), if approved, would give access to these therapies to people with […] The post Vertex Seeks to Expand FDA Approval of CFTR Modulators to Include More Mutations appeared first on Cystic Fibrosis News Today. Read More Advance Directives, Legacy, and Worrying Myself Sick Sep 01, 2020 03:00 pm | Bailey Vincent “Do you have an advance directive?” This is something most of us with CF have been asked before. For someone with a chronic illness, this question becomes as familiar as answering my name in one giant run-on sentence — “Bailey-Anne-Vincent-September-17th-1986” — and knowing what’s coming next. My name and birthday take on a meaning of […] The post Advance Directives, Legacy, and Worrying Myself Sick appeared first on Cystic Fibrosis News Today. Read More Interventional Treatment for My Social Sickness Sep 01, 2020 09:00 am | Brad Dell Life is hard, ain’t it? Sometimes all you need is a long cry session over hibachi in Toronto. And so that’s exactly what I had with fellow Cystic Fibrosis News Today columnist Lara Govendo. She has a mental health counseling degree, so she carries those good life-altering words. Over teriyaki chicken with a side of […] The post Interventional Treatment for My Social Sickness appeared first on Cystic Fibrosis News Today. Read More CFF Funding Will Further ContraFect’s Research Into Alternative for Antibiotics Sep 01, 2020 07:00 am | Patricia Inacio, PhD ContraFect will receive funding from the Cystic Fibrosis Foundation to conduct preclinical research about the potential of direct lytic agents, an alternative to conventional antibiotics, to treat lung infections caused by Gram negative antibiotic-resistant bacteria, including Pseudomonas aeruginosa. While antibiotics have had a profound impact on the eradication of otherwise deadly infections, their overuse has fostered the […] The post CFF Funding Will Further ContraFect’s Research Into Alternative for Antibiotics appeared first on Cystic Fibrosis News Today. Read More Recent News Same But Different Photo Contest Celebrates People With Rare Diseases UK Registry Finds CF Community Living Longer, Becoming More Diverse Transplant Anniversaries Acknowledge Trauma and Triumph Trikafta’s Arrival in Canada Could Cut CF Deaths by 15% Over 10 Years, Study Suggests Proteostasis Therapeutics Merges With Yumanity Therapeutics