martes, 1 de septiembre de 2020

Participation in patient support forums may put rare disease patient data at risk of re-identification | Orphanet Journal of Rare Diseases | Full Text

Participation in patient support forums may put rare disease patient data at risk of re-identification | Orphanet Journal of Rare Diseases | Full Text

Rare disease patients often struggle to find both medical advice and emotional support for their diagnosis. Consequently, many rare disease patient support forums have appeared on hospital webpages, social med...
Authors:James Gow, Colin Moffatt and Jamie Blackport
Citation:Orphanet Journal of Rare Diseases 2020 15:226
Content type:Research
 
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