Participation in patient support forums may put rare disease patient data at risk of re-identification | Orphanet Journal of Rare Diseases | Full Text

Participation in patient support forums may put rare disease patient data at risk of re-identification | Orphanet Journal of Rare Diseases | Full Text

Participation in patient support forums may put rare disease patient data at risk of re-identification

Rare disease patients often struggle to find both medical advice and emotional support for their diagnosis. Consequently, many rare disease patient support forums have appeared on hospital webpages, social med...

Authors:James Gow, Colin Moffatt and Jamie Blackport

Citation:Orphanet Journal of Rare Diseases 2020 15:226

Content type:Research

 

Published on: 31 August 2020

• ViewFull Text
 
• ViewPDF