Patient-reported outcomes on familial amyloid polyneuropathy (FAP) | Orphanet Journal of Rare Diseases | Full Text

Patient-reported outcomes on familial amyloid polyneuropathy (FAP) | Orphanet Journal of Rare Diseases | Full Text

Patient-reported outcomes on familial amyloid polyneuropathy (FAP)

Transthyretin familial amyloid polyneuropathy (ATTR-FAP) is a rare autosomal dominant inherited disease affecting multiple organ systems. ATTR-FAP patients’ experiences have rarely been documented. The aim of ...

Authors:Fabian J. Bolte, Christel Langenstroer, Frauke Friebel, Anna Hüsing-Kabar, Martin Dugas and Hartmut H. Schmidt

Citation:Orphanet Journal of Rare Diseases 2020 15:287

Content type:Research

 

Published on: 14 October 2020

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