martes, 28 de febrero de 2017

Atlas Federal de Legislación Sanitaria de la República Argentina

Atlas Federal de Legislación Sanitaria de la República Argentina



Atlas




Campaña FADEPOF, hoy 19 horas en Plaza de Mayo:

Conmemoración Día Mundial de las EPOF 2017 - 28/2 19 hs. Plaza de Mayo arrío de la Bandera Nacional

Fuente: Federación Argentina de Enfermedades Poco Frecuentes (FADEPOF)

Dra. Marisa Aizenberg: Día Mundial de las Enfermedades Poco Frecuentes

Dra. Marisa Aizenberg: Día Mundial de las Enfermedades Poco Frecuentes





Posted: 28 Feb 2017 09:10 AM PST
Conocé cuáles son las provincias adheridas a la Ley Nac. 26.689 y exigí tu derecho de acceso a la salud EPOF

En la actualidad, 13 jurisdicciones provinciales se han adherido a la Ley Nac. 26.689 de "Cuidado Integral de la Salud de las personas con EPOF".

Es importante saber si la provincia ha adherido a la Ley 26.689, lo que permitirá hacer exigible el derecho a la salud de las personas con EPOF. Existen otras provincias que poseen leyes específicas.


Conocé cuáles son las provincias adheridas a la Ley Nac. 26.689 y exigí tu derecho de acceso a la salud EPOF
Dra. Marisa Aizenberg: Día Mundial de las Enfermedades Poco Frecuentes

Orphanet Journal of Rare Diseases | Rare Disease Day 2017

Orphanet Journal of Rare Diseases | Rare Disease Day 2017

Biomed Central

Orphanet Journal of Rare Diseases



Rare Disease Day 2017

New Content Item

This year’s Rare Disease Day is focussing on the theme of research, and we here at Orphanet Journal of Rare Diseases are inspired by its 2017 slogan; ‘With research, possibilities are limitless’. The importance of this truth cannot be overstated, as continual research is necessary in order to unlock the mysteries often presented by rare diseases. In a field where concrete solutions are not immediate, it is essential to mine the different research we already have, to make connections where none existed previously; to complement that information with new findings; and to listen to the voices of rare disease patients, who often provide the foundations of what is known about these medical enigmas.
Take a look below to see our material that fits into this year's theme.


Raremark

Raremark's Sarah Venugopal (Head of Engagement and Communication) speaks to the significance of patient-led research for rare diseases:

Nature Reviews

Nature Reviews Neurology has made the Review from its rare diseases series, Clinical and biological progress over 50 years in Rett syndrome, free for a month in support of Rare Disease Day 2017. Go straight to the article or browse the series.

Findacure Rare Disease Essay Competition

Earlier this year, we partnered with Findacure to run their Student Voice Essay Competition.
Medical and biological undergraduate students across Europe set pen to paper to record their rare disease opinions, experience, and knowledge. 
We’d like to thank everyone who took part in the contest and are proud to present our finalist entries.
Winning Entry
Finalists Entries

Read some of the top Research & Review articles from OJRD

Review

Cystinosis: a review

Mohamed A. Elmonem, et al.

Published on: 22 April 2016


IgG4- related disease: an orphan disease with many faces

Herwig Pieringer, Ilse Parzer, Adelheid Wöhrer, Petra Reis, Bastian Oppl and
Jochen Zwerina


Published on: 16 July 2014


Congenital neutropenia: diagnosis, molecular bases and patient management

Jean Donadieu, Odile Fenneteau, Blandine Beaupain, Nizar Mahlaoui and Christine Bellanné Chantelot

Published on: 19 May 2011


Leaderboard



Springer Healthcare IME

We are pleased to announce the launch of a new independent educational resource created by Springer Healthcare IME for the rare disease, Adenosine Deaminase Severe Combined Immunodeficiency (ADA-SCID).
New Horizons in the Management of ADA-SCID is an independent initiative steered by an editorial board of multidisciplinary experts: Andrew Gennery, Robbert Bredius and Bobby Gaspar.
Launched on Rare Disease Day 2017, the ADA-SCID portal is designed to educate healthcare professionals who are presented with ADA-SCID patients, in the biology of the disease, how to screen for it, and current and emerging treatments.
New Horizons in the Management of ADA-SCID aims to facilitate this understanding by providing direct access to the latest research and commentary in the form of:
·         Independent editorials
·         Published articles
·         Expert interviews
·         Webinars
·         Case studies
In addition, a new Orphanet Journal of Rare Diseases review on ADA-SCID will appear on the portal before the end of 2017.  Please visit the site today and sign up to receive an email alert when more educational content is added.
New Horizons in the Management of ADA-SCID is produced by Springer Healthcare IME and supported by an educational grant from GlaxoSmithKline.
Orphanet Journal of Rare Diseases | Rare Disease Day 2017

Supporting Rare Disease Day 2017

BioMed Central – The Open Access Publisher
BioMed Central is proud to support Rare Disease Day 2017
Dear Prof CERASALE MORTEO,

This year’s Rare Disease Day is focussing on the theme of research, and we here at Orphanet Journal of Rare Diseases are inspired by its 2017 slogan; ‘With research, possibilities are limitless’.
Take a look at all our favorite picks for the day on our Rare Disease Day homepage, including a new OJRD article and several blog pieces, curated from Findacure’s “The Student Voice” essay competition; a new rare disease quiz; a piece from our Editor-in-Chief Dr. Ségolène Aymé; and a collection of OJRD articles which tie into this year’s Rare Disease Day theme.

Also in support of Rare Disease Day, Nature Reviews Neurology has made the Review from its rare diseases series, Clinical and biological progress over 50 years in Rett syndrome, free for a month.

Get the latest journal articles delivered straight to your inbox.

Best wishes,

The BioMed Central Team

For further information or enquiries please contact Customer Services at:info@biomedcentral.com.
BioMed Central Ltd 
236 Gray's Inn Road, London, WC1X 8HB, 
United Kingdom.

HERENCIA, GENÉTICA y ENFERMEDAD [https://herenciageneticayenfermedad.blogspot.com.ar] ► DIRECTORIO DE DOCUMENTOS EDITADOS EN FEBRERO de 2017 ▲ Contenidos Copyright by Cerasale Morteo, Víctor Norberto; 2009 a 2017. SALTA / ARGENTINA. 28 de FEBRERO de 2017. [00011]

Contenidos Copyright by Cerasale Morteo, Víctor Norberto. Salta, Argentina. 2008 a 2017.
MARTES 28 de  FEBRERO de 2017


DOCUMENTOS TOTALES CONSULTADOS ► ¡19.142.958 

ÍNDICE DE SEGUIMIENTO ► 55

ÍNDICE DE CONSULTA ► 74,57


OCHO AÑOS
CIENCIAS DE LA HERENCIA VERSIÓN 1
INFORMACIÓN CALIFICADA PARA PACIENTES Y SUS FAMILIAS
INFORMACIÓN CIENTÍFICA ACTUALIZADA 
Salta / ARGENTINA
TELÓMEROS
GRUPO DE BLOGS SALUD EQUITATIVA
▲ CIENCIAS DE LA HERENCIA
▲ CIENCIAS MÉDICAS NEWS
▲ GESTIÓN EN SALUD PÚBLICA

Contador Google ►

TOTAL DOCUMENTOS CONSULTADOS desde enero 2009 a la fecha:  5.955.566+
DOCUMENTOS CONSULTADOS EN el grupo de blog´s de SALUD EQUITATIVA desde 2009 hasta hoy19.142.958+
TOTAL de Páginas consultadas, copiadas, distribuidas, traducidas, comentadas, etc. desde el inicio de los blogs (3): > 473,9 millones


Páginas vistas por países


Gráfico de los países más populares entre los lectores del blog
EntradaPáginas vistas
Estados Unidos
1.492.484
España
989.795
México
536.763
Argentina
364.807
Alemania
330.977
Francia
283.736
Colombia
218.637
Perú
130.025
Chile
112.778
Venezuela
83.401
Polonia*
China *
(*) sin datos fidedignos


consultas: 5.955.566+ [¡Muchas GRACIAS! a todo el universo de habla hispana y de habla no hispana que nos confían sus consultas] MUCHAS GRACIAS a TODAS nuestras fuentes por apoyarnos permitiéndonos difundir ciencia genuina. Estamos demostrando, día tras día, que la salud importa y que es prioridad de las personas... no así de los estados políticos.


Documentos EDITADOS durante el mes de FEBRERO de 2017: 1.019+
Documentos acumulados en 2017: 2.157+
Documentos publicados acumulados desde enero 2009: 75.826+
Documentos totales editados en los blog´s ► 256.677+


Google registra ►
Páginas vistas en el último mes: 93.437
Páginas totales vistas en el último mes: 350.833


Archivo del blog


Archivo del blog


NUESTRA SEÑORA DE LA MEDALLA MILAGROSA

NUESTRA SEÑORA DE LA MEDALLA MILAGROSA
Ella me ha guiado a lo largo de mi vida


Páginas vistas en total

Sparkline 5,955,642