Data sharing [NEW TOPIC PAGE]

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Last Posted: Apr 24, 2019

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• BRCA1/2 Variant Data-Sharing Practices.
  Bollinger Juli M et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2019 Mar 47(1) 88-96
• Genomic Data-Sharing Practices.
  Villanueva Angela G et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2019 Mar 47(1) 31-40
• Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons.
  McGuire Amy L et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2019 Mar 47(1) 12-20
• Variant classification changes over time in BRCA1 and BRCA2.
  Mighton Chloe et al. Genetics in medicine : official journal of the American College of Medical Genetics 2019 Apr
• Big Data Needs Big Governance: Best Practices From Brain-CODE, the Ontario-Brain Institute's Neuroinformatics Platform.
  Lefaivre Shannon et al. Frontiers in genetics 2019 10191
• A Review of the Challenges of Using Biomedical Big Data for Economic Evaluations of Precision Medicine.
  Fahr Patrick et al. Applied health economics and health policy 2019 Apr
• Genomic Common Data Model for Seamless Interoperation of Biomedical Data in Clinical Practice: Retrospective Study.
  Shin Seo Jeong et al. Journal of medical Internet research 2019 Mar 21(3) e13249
• Clinical exome sequencing in 509 Middle Eastern families with suspected Mendelian diseases: The Qatari experience.
  Al-Dewik Nader et al. American journal of medical genetics. Part A 2019 Mar
• Gathering data for decisions: best practice use of primary care electronic records for research.
  Canaway Rachel et al. The Medical journal of Australia 2019 Apr 210 Suppl 6S12-S16
• Responsible data sharing in international health research: a systematic review of principles and norms.
  Kalkman Shona et al. BMC medical ethics 2019 Mar 20(1) 21

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